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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Video EEG
A MyEpilepsyTeam Member asked a question 💭

I have to a video eeg done. I have watched some YouTube videos, but still have questions. Will they just stop all my medications as soon as i am in the hospital? Or what?

A MyEpilepsyTeam Member

It all depends on how long the EEGV is . For one day, they won’t do a thing with meds.

From 4 - 7 days they will decrease your meds little bit at a time everyday
They want to try and get as big of… read more

What Do People Do For Anxiety Instead Of Meds? In Example Breathing Control.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

That is a great way I bet. I meditate with praying.

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Was Wondering How Long It Takes Some People To Get Their Memory Back After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

I sometimes find it takes a few days for my memory and concentration to get back to normal.

A MyEpilepsyTeam Member

I figure everyseizure is 3 ,4 days blanked out of my memory.in over55 years a ot of lost time.Onetime went to florida by car from massachusetts with some friends.Was entering florida had agrand mal.to… read more

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Side Effects On Certain Food With Your Medicines
A MyEpilepsyTeam Member asked a question 💭

Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?

A MyEpilepsyTeam Member

I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate

Medical Marijuana
A MyEpilepsyTeam Member asked a question 💭

Has anyone taken any medical Marijuana meds? What are the pros and cons?

A MyEpilepsyTeam Member

I am on a low dose of Epidiolex. They would have liked to double it because they thought I might be having seizures and not remembering them. The Epidiolex has helps.I am also on Onfi, Lamotragine… read more

How I Started To Have Seizures And Questions Around Epilepsy
A MyEpilepsyTeam Member asked a question 💭

Hi my name is kimmie. I am 45. The only one in my family with epilepsy is my cousin. I didn't have any problems until few years ago. When i was 22 i was in a Motorcycle wreck with no helmet. My head is what broke my fall doing 60. We hit a northern deer. I have memory problems till this day. About 4 years ago my long term boyfriend of 17 years cheated on me. I was so stressed out from the mean things he said and did that i started to blackout and fall to the gound and would and Contort while i… read more

A MyEpilepsyTeam Member

Kim614, my seizures didn’t actually “appear” until 6 years after my accident. About 70% of brain injury survivors will experience at least one seizure in their lifetime, and rarely just the one. So… read more