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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Your Seizure Triggers?
A MyEpilepsyTeam Member asked a question 💭

These are the kinds of things that cause my seizures, how common are they with everyone else? I'd like to know what triggers your seizures:

- Time spent on electronic devices
- Medication not taken on time
- Not enough sleep or rest
- Going to bed late
- Not drinking plenty water
- Not eating healthy
- Getting to hot
- Reading to much
- Showering late at night
- Dust on clothes or in the house
- Infections like cold or flu
- Certain foods
- Bright or flickering lights
- Stress

A MyEpilepsyTeam Member

While very hard, it sounds like therapy will be good for you in the end.

I don't know what it is about people staying away. Everything is all about families (religion, ways of socializing with… read more

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name

Side Effects On Certain Food With Your Medicines
A MyEpilepsyTeam Member asked a question 💭

Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?

A MyEpilepsyTeam Member

I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate

If Ok To Ask, What Has Anyone Who Has Been Pregnant With Epilepsy Been
A MyEpilepsyTeam Member asked a question 💭

For example, maybe having to go off or reduce meds, during pregnancy and post, illness etc.

A MyEpilepsyTeam Member

Some of the safest meds for pregnancy are AEDs now. Check with Dr bout yours just to ease your mind. When had kids 44 years ago only 2 meds to choose but not today. Ask Dr also what to expect while… read more

Can U Have Children When Ur A Epileptic And If U Can. Do Ur Children Get It From U
A MyEpilepsyTeam Member asked a question 💭

If u can have children when u have seizures can ur children get it from u

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I'm the same I've had it since I was 4 and never really had a official cause I did have 4 health records destroyed in a big flood we had in 2011 so they may have had one but… read more

How Likely Is It That One Or Any Of My 3 Children Will Also Develop Epilepsy At Some Point?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

As Bryan explains, if you listen to his pod cast, there are a lot of reasons (unfortunately the most frequent is unknown) of why an individual of any age develops Epilepsy.

Not to mention, even if… read more