Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
When you are asked to take medication in the Morning and Night when Label on the box, would you follow it to 12 Hours between taking it, or what would you think of Various time in the Morning and A Various time at Night? If you didn't have a set 12 Hour Period would you think people would have more Seizures, Because I use to work early at 6am up to Last February, but would take my Medication at 9pm for Night , so this would be over a 12 Hour Period.
I’ve had a few like that, but not very often. It’s when I’ve been stressed and lack of sleep happening. I try to avoid that because those will impact me for days. Hope you recover soon.
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
Hello! I could not find any answers to this topic. Do you all find that you generally need more sleep than others? I know everyone is different, but I find that I usually need 8+hours of sleep daily. I am very diligent about getting enough sleep as that is one of my main triggers. On the weekends, I can easily sleep for 9+ hours. Is anyone else like this?
I would say yes, I’m the same way in that I need about 8 hours on a regular schedule in order to function normally, and without it I’ve been more prone to seizures. But I purposely plan and keep to… read more
So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more
read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling
Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?
I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate
I get tired very easily and my meds are stable now and no seizures so I don't Really understand. I even want to start working full time again because when I have energy I have loads but it runs out quickly which is very frustrating. Like one days work means at least 1 days sleep
@A MyEpilepsyTeam Member thank you, they did a 24hour EEG recently and showed I do have epilepsy but my medication kicks in just before I would potentially have a seizure and it happened multipul… read more
My 9 year old missed his levetiracetam this morning. We did not realize it until noon. He takes his medicine twice a day. Every 12 hours. We try to take it every time at the same time. His doses are 8:30 am and 8:30 pm. We have this set due to school and bed time. My question is: Is it safe to skip one dose. My son only had 2 full convulsion seizures. He also has night seizures/terrors when sleeping. His doctor wants to start winging him off his medication after we view his next EEG and… read more
Thank you everyone for your reply. So far he’s fine. No affects from 1 mission dose. We have timers and alarms on every phone and device to remind us. We were distracted at that time. I hope it never… read more