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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Side Effects On Certain Food With Your Medicines
A MyEpilepsyTeam Member asked a question 💭

Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?

A MyEpilepsyTeam Member

I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate

Has Anyone Been For A 24 Hour Eeg Scan? Is It Better Then A Normal Eeg Scan?
A MyEpilepsyTeam Member asked a question 💭

I am going for a 24 hour scan next week and I want to see if it will show me blanking out and being restless as the normal eeg shows my seizures but not to an extend on how long and so forth. Is this scan worth my while?

A MyEpilepsyTeam Member

I had those tests plus a digitrace for when your being at home

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

What Songs Do You Listen To, To Cheer You Up?
A MyEpilepsyTeam Member asked a question 💭

I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.

A MyEpilepsyTeam Member

Some songs that I like:

#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more

Seizures
A MyEpilepsyTeam Member asked a question 💭

I am 57 with MS. I am mobile but still have some issues such as falling and dizziness. 2 weeks ago I had 3 seizures in 2 days. Have never had 1. Went to neuro and after tests declared my ms has caused epilepsy. Do you spend time alone? I find myself being afraid to be alone.

A MyEpilepsyTeam Member

Keppra is the medication I am on also.

How Do You Handle The Huge Life Changes After Being Diagnosed As An Adult?
A MyEpilepsyTeam Member asked a question 💭

For those diagnosed later in life, how long did it take to overcome the sudden changes in your life? I was a total extrovert before seizures, always on the go. I never want to leave the house no because I'm scared of having a seizure in public or around friends most of which don't even know that I have them yet. The sudden change of not being able to drive has been very hard. It's been 13 months since I was diagnosed & I still feel completely isolated and cut off from the world outside my house… read more

A MyEpilepsyTeam Member

I've lost most of my family and friends because of my condition!! But y'all and little few family and friends that I have in my life is worth living and fighting to get better if that's even possible… read more