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Embrace Or Epilert Watch? I Wanted To Know If One Is Better Than The Other. If Any Would Work For Secondary Generalized Seizures.
A MyEpilepsyTeam Member asked a question 💭

Will epilepsy watches like embrace and epilert work for secondary generalized seizures

A MyEpilepsyTeam Member

I do know someone had wristband on and they were just tying their shoelaces and the wristband told them they were having a seizure. It sounds like any wristband can't tell the difference between… read more

What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Neurontin
A MyEpilepsyTeam Member asked a question 💭

Does anyone else get joint pain whilst taking Gabapentin. ? Mostly hands fingers if not I guess it must be my age 😆😆 well at 21 I am getting on a bit. Not really I am 49 but these pains only seem to have come whilst been taking these tablets. It maybe coinsidental 🌷

A MyEpilepsyTeam Member

I have joint pains on carbamazepine

[[treatment:Vimpat:5526c9df1fcaa3c8cb000399]] And [[treatment:Keppra:5508b44d6bcd6155dd0008e5]] And Pregnancy
A MyEpilepsyTeam Member asked a question 💭

Has anyone taken [[treatment:keppra:5508b44d6bcd6155dd0008e5]] and [[treatment:vimpat:5526c9df1fcaa3c8cb000399]] during pregnancy or know of anyone who has? The lack of data on [[treatment:vimpat:5526c9df1fcaa3c8cb000399]] during human pregnancy scares me a lot.

Thank you.

A MyEpilepsyTeam Member

With my first kid I was completely off my meds and didn’t have any seizures at all. With my second kid I was having multiple seizures a week. The only medicine I can take because I’m allergic to all… read more

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I’m Only 18 But This Has Been On My Mind
A MyEpilepsyTeam Member asked a question 💭

Those with epilepsy that had children what was your experience like? Did you have to be off your meds? Was it scary? I know I still have lots of time to worry and decide if I even want a family and Ik I can have the conversation with my doctor when the time comes but share your stories

A MyEpilepsyTeam Member

Meds for epilepsy are one of the safest for pregnancy. My son had severe cleft lip & palate cause 40 years ago there weren't. Read my story to see how I know so much bout this. During my pregnancy had… read more

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

So Is It True No Alcohol With Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I'm curious what the consensus is here

A MyEpilepsyTeam Member

49 years and 6 months ago, 2 grand mal in a row my neurologist said no alcohol. Dilantin for my seizures AA for my alcoholism. I also have limited coffee/caffeine my last grand mal was 15 years ago… read more

How Long Have You Had Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Since 2012

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling