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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Happy Pill?
A MyEpilepsyTeam Member asked a question 💭

I'm a Status Epileptic. I have a fast dissolving Zanax to stop my seizures. The next day I wake up in an angry raging mood. I tried various types of cannabis, but nothing took away the rage. I started taking psychedelic mushrooms on occasion to help build my neurons. Was wondering if anyone thought about how they are going to use the mushrooms to help?

A MyEpilepsyTeam Member

Im exactly the same i would be very angry, but took it out on my friends and my family
I felt i didnt like to be like the angry i got
Saw a phyayrist and she gave me some tablets and now im better.so… read more

Does Anyone Have Status Epilepsy That Can Tell Me Some Of Your Signs And What Triggers Yours. I
A MyEpilepsyTeam Member asked a question 💭

Mine have lasted for a day to 3 days. I get so tired I can barely walk. My eyes get so heavy until they start blinking. Most of the time I can hear but not move. Riding in a car makes me have one. Just wondering about someone else that has status epilepsy.

A MyEpilepsyTeam Member

I also have mood changes from being a shy person to being a telling friends if I liked something or not. Now they get exactly what I think and it's very up & down the moods.

Possible Dismissal
A MyEpilepsyTeam Member asked a question 💭

I suffer with epilepsy, hypothyroidism and fibromyalgia along with other conditions. I have had considerable amounts of absence tho majority is with a GP certificate. I had a severe Epileptic seizure causing me to hallucinate where I had to be taken into hospital. My HR have me on absence review and now that I have revoked the number of days I am allowed this month even though I was certified, I now face another formal review meeting to discuss the possibility of dismissal. I applied for PIP… read more

A MyEpilepsyTeam Member

Is it legal to dismiss people with disabilities. Here they have to do their best to find a person jobs that are more suited to the workplace and the employee or medical retirement if its impossible. I… read more

What Are The Best Diapers To Use
A MyEpilepsyTeam Member asked a question 💭

What are the best diapers to use to control your epilepsy I have had it since I was 12 now I am thirty

A MyEpilepsyTeam Member

I prefer Always brand Descreet Briefs over Depend cause they are
little bikinis and I'm little too. And they work better too. .

Which MediCATION Made Your Hair Fall Out
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Keppra. The first thing that my Dr said was about hair thinning

I Bit My Lip
A MyEpilepsyTeam Member asked a question 💭

I had 3 seizures on Saturday and bit up my lip and tongue pretty bad. Any ideas on how to ease the pain help the healing process. I've already been trying sea salt and warm water

A MyEpilepsyTeam Member

Oh my,I hate that happened to you,and I hope you get to feeling better soon

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

VNS Therapy
A MyEpilepsyTeam Member asked a question 💭

My son has been suffering from seizures for 2 years. No meds seem to work. He was recently diagnosed with a new gene mutation called DALGA. Its very new to the point they dont know much about it. It is the cause of my sons seizures.
Now, they are talking about VNS therapy.
If anyone has it i would like to know more about your experience or if you know someone with it. Anything will be helpful. Please & thank you!

A MyEpilepsyTeam Member

You could ask if you are a canidate for RNS (responsive nuerostimulator). It stimulates without needed a magnet to trigger it. It is based off of eeg monitoring from electrodes in your brain. I have… read more

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Service And Or Therapy Training Low Cost For My Puppy And Son
A MyEpilepsyTeam Member asked a question 💭

Hi, I have a puppy and son who's special needs, I'm truly wanting to get her trained yet the costs are crazy, and he keeps me way too busy. , I was wondering if anyone has resource to Possibly get her trained , I'm sure he's without doubt qualify for service dog, please, if not I may have to give up our puppy!? I live in St. Louis area

A MyEpilepsyTeam Member

I think my dog would but I need information and where I could get it done

Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name