When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
My Daily Medicine List
1- Dilantin ((Brand Name) caps 400mg. Per day
2- Lamictal (Brand Name) 700mg. Per day
3- Verapamil 80 mg. Per day
4- Zone gran 400mg.per day
5- Dilantin (chewable) 50mg. Per day
6- Tranxene 7.5 mg per day
7- Singular 10 mg per day (Asthma pill)
8- 2 puffs Advair 2 times per day (Asthma)
9- Sleep with BIPAP at night (improves sleep)
10- As needed to stop seizures 2mg Lorazapam
(Which is only given when I have clusters
Or a longer than normal seizure,… read more
Wolf2677, I am 59 almost 60-10/10/17. For me its been alternating medications and dosages. So far we haven't discussed surgery. Prior to my marriage seizures were about six weeks apart. I got… read more
Raylene, There are two-2-types of Disability that Social Security issues they are: SSI and SSDI . Be certain that you get the type of Disability that you are qualified to receive. SSI only gives… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
Can you be free of epilepsy and after years return back?
Yes. You can be seizure-free for years and experience what one neurologist of mine termed "break-through seizures".)
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
It was in 2014 is when the big scare happened with one of my seizures sorry I was about 2 years off
In the past, once in a great while I would feel a little jerk. Something like a reflex test. But more and more often, I'm going through these cycles. Especially when going to or waking up from sleep. Is something causing this?
That sounds pretty consistent. I rarely have feelings or auras before hand, but when I do I know to lay down.