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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Hi Have Any Of You Guys Had Temporal Lobectomy Surgery? If So What Is Outcome And Was It Successful
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

After approximately 18 years of trying all sorts of medications and treatments to control intractable daily / weekly temporal lobe seizures and approximately monthly grand mal seizures, I made the… read more

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How Long Have You Had Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Since 2012

Happy Pill?
A MyEpilepsyTeam Member asked a question 💭

I'm a Status Epileptic. I have a fast dissolving Zanax to stop my seizures. The next day I wake up in an angry raging mood. I tried various types of cannabis, but nothing took away the rage. I started taking psychedelic mushrooms on occasion to help build my neurons. Was wondering if anyone thought about how they are going to use the mushrooms to help?

A MyEpilepsyTeam Member

Im exactly the same i would be very angry, but took it out on my friends and my family
I felt i didnt like to be like the angry i got
Saw a phyayrist and she gave me some tablets and now im better.so… read more

Reading And Dizziness
A MyEpilepsyTeam Member asked a question 💭

I will get dizzy after reading a few pages. Generally followed by headache. This can last up to a few hours My concentration level is also very poor

Does anyone else experience this problem

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, After just 2 Years, I ended up knowing what to do! But once I stated Volunteering for Epilepsy Sudbury-Manitoulin in 1983, I found out more stuff about Epilepsy! Then in… read more

Does Anyone Here Have Temporal Lobe Epilepsy ?
A MyEpilepsyTeam Member asked a question 💭

i have had epilepsy since 4 and i was recently diagnosed with temporal lobe epilepsy and my epilepsy specialist said that surgery might be a good option but i also have other types of epilepsy so i dont know if my other types would be affected not only that but i have a traumatic brain injury and acute encophalophaly

A MyEpilepsyTeam Member

Francis2,
I don’t blame You!

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Does Anyone Have Status Epilepsy That Can Tell Me Some Of Your Signs And What Triggers Yours. I
A MyEpilepsyTeam Member asked a question 💭

Mine have lasted for a day to 3 days. I get so tired I can barely walk. My eyes get so heavy until they start blinking. Most of the time I can hear but not move. Riding in a car makes me have one. Just wondering about someone else that has status epilepsy.

A MyEpilepsyTeam Member

I also have mood changes from being a shy person to being a telling friends if I liked something or not. Now they get exactly what I think and it's very up & down the moods.

How To Improve Your Memory Recall?
A MyEpilepsyTeam Member asked a question 💭

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

A MyEpilepsyTeam Member

I wouldn't know, Besides Diagnozed with 4 forms of Epilepsy since 1982 to the year 2000, also had 1 new type of Seizures with Full Amnesia that Lasted 3 days long every single time I had Prescription… read more

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Possible Dismissal
A MyEpilepsyTeam Member asked a question 💭

I suffer with epilepsy, hypothyroidism and fibromyalgia along with other conditions. I have had considerable amounts of absence tho majority is with a GP certificate. I had a severe Epileptic seizure causing me to hallucinate where I had to be taken into hospital. My HR have me on absence review and now that I have revoked the number of days I am allowed this month even though I was certified, I now face another formal review meeting to discuss the possibility of dismissal. I applied for PIP… read more

A MyEpilepsyTeam Member

Is it legal to dismiss people with disabilities. Here they have to do their best to find a person jobs that are more suited to the workplace and the employee or medical retirement if its impossible. I… read more

What Are The Best Diapers To Use
A MyEpilepsyTeam Member asked a question 💭

What are the best diapers to use to control your epilepsy I have had it since I was 12 now I am thirty

A MyEpilepsyTeam Member

I prefer Always brand Descreet Briefs over Depend cause they are
little bikinis and I'm little too. And they work better too. .