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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

Has Anyone Here Had The ECoG EEG?
A MyEpilepsyTeam Member asked a question 💭

I am set to have the ECoG Intracranial EEG(the grid on the surface of the brain), I have had the Depth Electrodes once. With my limited research it sounds that the depth electrodes were significantly easier... Just curious if someone could shine some light on what that whole process looks like and what I have to look forward too.

A MyEpilepsyTeam Member

Me 5 days

How Long Have You Had Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Since 2012

Medicine Reminder?
A MyEpilepsyTeam Member asked a question 💭

I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?

Last of 313 replies sign up to view previous answers
A MyEpilepsyTeam Member

I now have a Nurse who is supposed to come in and set them up. I was running low on some that needed new Prescription Refills. Now I have everything I need. Am very capable of setting up meds. I have… read more

Mysoline
A MyEpilepsyTeam Member asked a question 💭

when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work

A MyEpilepsyTeam Member

I just had one done. The results should be available by the 26th, which is when I have an appointment.
Leslie

For Those Who Have Grand Mal Seizures I'm On Keppra Does Missing One Dose Make You Have A Seizure
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Missing 1 no but if you keep missing your medication it will cause sezure I look at it medication good sleep water and less stress 😬 you have to put your self first

Does Anyone Else Struggle With Memory?
A MyEpilepsyTeam Member asked a question 💭

It doesn't matter how much I try paying attention to the conversation. I couldn't tell you everything word for word even if it's just happened. It's like it goes in one ear and out the other. Like following instructions if I've been given 3/4 things to do if I've not written down I would be able to remember 3 & 4 but not 1 & 2

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I am sorry to hear that your family reacts that way. However, you have friends on here, and we can reassure you that you are normal. Epilepsy/Seizure Disorder doesn't make… read more

What Is Y’all’s Dream While Having Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I live with epilepsy day after day and my dream is to be a video editor but there’s been another dream stopping from happening because of all these meds I’m going to attempt to try it anyways though by training myself for the Navy. I hope my body can take this dream. This is important.

A MyEpilepsyTeam Member

You can do anything please don't let this epilepsy ruin your life ... a gave up my jibs because of ot a regert it a was going to collapse once a week to learn my lifted a had 2 jobs 1 in a care… read more

Contemplating Surgery
A MyEpilepsyTeam Member asked a question 💭

As I wait for the epileptologist to contact me about my options for surgery, I am contemplating whether or not to have it. I had simple partial seizures that have now evolved into complex partial seizures. They have determined the location of where the seizure originates. At 44, listening to some podcasts about the recovery process of surgery makes me wonder if it would just be easier to continue with the seizures, though the epileptologist warn me that they would get worse over time. Though I… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member my first surgery was technically a failure. I was crushed emotionally. It was so hard
I am sorry for you have you gotten any other relief? Have you talked to the doctors… read more

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