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Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I had more seizures in my 40's than any other time except my teens. The seizures I had in peri menapause were also more severe, causing a loss of memory and balance. It took weeks to get over each… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
Look im at the point in life im just going through the motions "Some call me a lost soul." i give myself less then a 2 year period of time of life or the will to deal with people or the fact of being a defective human being for leaving at home with my mom "No i will not i refuse to live in a apartment i hate people i have goals but not being "normal" killed them even though they are simple goals." im tired of the thoughts the seizures and the people. Some days i wanna go ape shit on people i… read more
My marriage sucks, my kid hates me, my dog only likes me cuz I scratch her behind her ears. Everybody Is Effed up, except me
Got no $? For $6 and a trip to the hardware store. An 1 1/2 pvc pipe… read more
Do you guys drive?
Losing the right or ability to drive is not only hard it just down right sucks! It is a means to independence. I haven’t driven in almost 9 years and I hate every minute. Having said that I look at… read more
I’m really happy that Tampa Bay Bucs made it. They’re playing home against Dallas Cowboys Monday night!
I wish I could say something but my husband is a football official (he is an umpire). Both he and. I would be in so much trouble if it was found that he made a prejudiced statement. So enjoy the… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more