No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more
Ahh ok I was just wondering. Thank you Marilee.
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
Did anyone switch from brand name Vimpat to generic Vimpat recently now that it's available? If so, how are you feeling?
I started generic Vimpat/lacosamide a few weeks ago after 3 years on the brand name. Still trying to figure out how it's going for me. Sometimes I feel like I'm angrier than usual and felt some deja vu sensations today. Used to have those with brand Vimpat every few months though so not anything new.
I switched to generic due to insurance in February 2023. I have had a ton of issues including breakthrough seizures and weakness and lots of double vision and dizziness. My doctor just increased the… read more
Where I live they have made wearing masks up to us. We are still 6 feet away from one another. The small activities only allow 10 people in a room, still. I am sure the isolation when we could… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
I'm in the proces of applying for HCPC registration and I need to declare about having epilepsy and my relatively recent seizures - will this impact me getting my registration?
Occupational health have previously advised no lone-working, which would impact my work immensely! Anyone have similar experiences?
Epilepsy eventually took my career from me and more but it has given me some things in return.