I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I usually have 2-3 grand mal seizures each year. I've had 8 now, in just the first 5 months of my pregnancy. Given my experience over the last 21 years of my life since I was diagnosed, I think I'll have a seizure during labour (fatigue & stress). Its a huge concern of mine and I think a planned C-section is a better option.
I had my sons very young 18 I was pregnant and had our oldest 8.lb 9oz ...ouch !! I did have seizures in my pregnancy and did a natural delivery. Second son was just under 8 lbs ??? You should do… read more
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?
During a pleasant, perfect late spring bike ride in 2011 (I've biked regularly since age 25) on a great well-known trail, my vision suddenly turned weird. All the beautiful colors of late spring turned suddenly to only 2 colors - red and gold. It stayed that way for about 10 minutes as I slowly biked along the trail. Normal vision then returned. In subsequent weeks other events occurred. I lost the ability to speak properly for 1-2 minutes and the ability to write down simple words in English. I… read more
I was classified as "reason unknown" for 55 years, until I started with a new neurologist (one in Boston rather that Southeastern Massachusetts), and I had my first of all of these: 2 brain MRIs, Pet… read more
Had epilepsy since 2020 am 55 now was a shock to be fair am on keppa start on 50mg am on 1500 now still having sezure so hope this helps but I see some have had surgery and how's that being if they had surgery
I am pleased that unless I do not pay attention to my triggers, there are no problems. Not getting good quality sleep. not eating enough or properly, in my case being overheated are… read more
It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...
After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
I am also taking Divalproex...so if anyone is taking these two is it affecting you?
@A MyEpilepsyTeam Member , Continued from above: In mid 2019 I began having these verbal tics where I say or holler words, names, phrases or humming or moaning noises uncontrollably & I don’t know… read more