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Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
There are 2 possibilities
1. You experiencing bad side effects of your medication(s)
2. You are actually having , some form of a seizure.
I too have blackouts. They are a type of seizure . I also… read more
I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
I had serzuire since I was 2 yrs old and I am 31 yrs old and my son is 10 yrs old just wondering if he would have them or if would get them from me
I was wrong in my original comment, you can pass epilepsy through genetics. Although just because you have epilepsy doesn’t necessarily mean that it was passed on through genetics
Hey everyone new here
Just a little background. I was diagnosed with Juvenile Myoclonic Epilepsy in 2017 and I am 30 years old. As many of you know you can also have Tonic Clonic and Absence seizures under this umbrella, so to speak. I have suffered status twice from tonic Clonic seizures due to flashing lights. Just wondering if anyone has been diagnosed later in life. I also have a Chiari malformation which is a herniation of my spine into the fornum magnum ( back of the skull) of… read more
Well let us know what happens. Best of luck.
I feel like I’m falling apart! My skin, hair and muscle tone are changing and my energy levels are too. Any info on how to approach management of care (external and internal) without affecting seizures? I eat clean and exercise, but I’m suddenly feeling at a loss here. Any info or personal experiences are welcomed. Trying to be as great as I can while I can. Thx!
My looks have long surpassed me. I'm not pretty anymore, I lost my figure, my skin used to be flawless without make-up. I praise God to still be alive but sometimes I wonder if my purpose was to not… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?
Thanks, Kathryn13.
I usually have 2-3 grand mal seizures each year. I've had 8 now, in just the first 5 months of my pregnancy. Given my experience over the last 21 years of my life since I was diagnosed, I think I'll have a seizure during labour (fatigue & stress). Its a huge concern of mine and I think a planned C-section is a better option.
I had my sons very young 18 I was pregnant and had our oldest 8.lb 9oz ...ouch !! I did have seizures in my pregnancy and did a natural delivery. Second son was just under 8 lbs ??? You should do… read more
Any positive information on Epidiolex as the only meds? Currently on Zonagran. I'm reading and so many bad side effects. We asked our doctor to switch
Had a abnormal 24 EEG 1 month ago and in 2019,but not the cleavland clinic wants a 3 day EEG, I wish the shared data more . We have a functional doctor appointment and generics appointment. I'm my son's voice until he finds it and if takes fighting for his rights and researching like a scientist, then must be done.
JDelakit Understand concern bout meds sides but look at some ads for over-counter meds on TV. Side effects galore.The 3 day testing is fantastic not bad if you want to know why this will give you… read more