Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
I’m a teenager and sometimes I feel like an outcast because I don’t have a license or a car. It just sucks asking for a ride all the time and they get mad at you. It’s just I’m struggling with this so much. I just want to feel like I have some control.
I was wondering... you folks who are lifelong musicians... has anyone's playing ability remained unaffected, or only marginally affected? Or has it spiraled downward into a steep decline? The holy grail of a performing musician is flawless execution, has your execution been affected? How severely? Tremors? Loss of muscle memory? Loss of fine motor control or dexterity? Inability to multi-task, like sight reading while you play? Did you lose your "aim" working your instrument? Have 16th notes… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Im going on a trip soon thats a 17 hr time difference ahead of where i normally live. Ive gone through 2 hr time differences at most. Has anybody gone on far distanced trips? How did that go with the seizures? Was it harder goinng to your travel destinatiom or bacck home after? Any advice to hopefully help make if slightly easier with managing the seizures?
I have travelled to Europe from NY, that’s a 6 hour difference; 17 hours is a whole other story.
The advice I would give is to adjust your meds according to your usual time intervals, and not just… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
Someone on here mentioned wanting to locate old friends.
Have you tried Facebook or other social media sites?
My high school class has established such a site.
Through Facebook I was able to reestablish contact with the "boy" who used to live down the street
from me. I also re-met a cousin I hadn't seen since we were both 6 years old.
Give it a try. It's nice to contact old friends. (In my case really old LOL)
The best of luck to you. ❤️
35 years? Wow! That's wonderful.
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
My son has focal seizures and on three meds .. he still gets seizures auras make it very hard for him … his doctors suggest a brain surgery as he has a brain injury during birth … any advice or recent experience anyone had ….