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No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I’m really happy that Tampa Bay Bucs made it. They’re playing home against Dallas Cowboys Monday night!
I wish I could say something but my husband is a football official (he is an umpire). Both he and. I would be in so much trouble if it was found that he made a prejudiced statement. So enjoy the… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
How many people still manage to still work full time and have breakthrough seizures?
I worked 6 days a week 50/hrs wk. for 35 years. I had worked in a lumberyard. I started working outside making houseloads of lumber. Very physical labor. I moved into customer service, less physical… read more
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
I had serzuire since I was 2 yrs old and I am 31 yrs old and my son is 10 yrs old just wondering if he would have them or if would get them from me
I was wrong in my original comment, you can pass epilepsy through genetics. Although just because you have epilepsy doesn’t necessarily mean that it was passed on through genetics
Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?
Thanks, Kathryn13.
Any positive information on Epidiolex as the only meds? Currently on Zonagran. I'm reading and so many bad side effects. We asked our doctor to switch
Had a abnormal 24 EEG 1 month ago and in 2019,but not the cleavland clinic wants a 3 day EEG, I wish the shared data more . We have a functional doctor appointment and generics appointment. I'm my son's voice until he finds it and if takes fighting for his rights and researching like a scientist, then must be done.
JDelakit Understand concern bout meds sides but look at some ads for over-counter meds on TV. Side effects galore.The 3 day testing is fantastic not bad if you want to know why this will give you… read more
Hi ya it s not easy working with epilepsy I take my hat off to all them that do like you say it s when you're I'll and having to take time off bless you never give up ☺️
My daughter is on lamictal. We are at a pretty high dose. But we still have issues with her Myoclonic jerks from her JME. We are controlling big seizures. But hoping that this will help these morning Myoclonic stop.