Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
I usually have 2-3 grand mal seizures each year. I've had 8 now, in just the first 5 months of my pregnancy. Given my experience over the last 21 years of my life since I was diagnosed, I think I'll have a seizure during labour (fatigue & stress). Its a huge concern of mine and I think a planned C-section is a better option.
I had my sons very young 18 I was pregnant and had our oldest 8.lb 9oz ...ouch !! I did have seizures in my pregnancy and did a natural delivery. Second son was just under 8 lbs ??? You should do… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Ive been sacked i have epilepsy was diagnosed over 5 years ago my mental health impacts this I had a stage 4 meeting I wasn’t aware of the time till i came into work today meeting was at half 9 I even cancelled a 4 week sick note to come back in as I had a seizure last weekend what can I do I’ve been in the job 9 years 😩any advise please
Sorry to hear. I'm kind of in a similar situation. I wasn't sacked though I basically left to go to another job then I had the seizure 2 months later. Originally I had planned on going back there if I… read more
How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone
The stress ï now have too much in my mind. Take it one day at a time
Hey everyone new here
Just a little background. I was diagnosed with Juvenile Myoclonic Epilepsy in 2017 and I am 30 years old. As many of you know you can also have Tonic Clonic and Absence seizures under this umbrella, so to speak. I have suffered status twice from tonic Clonic seizures due to flashing lights. Just wondering if anyone has been diagnosed later in life. I also have a Chiari malformation which is a herniation of my spine into the fornum magnum ( back of the skull) of… read more
Well let us know what happens. Best of luck.
It doesn't matter how much I try paying attention to the conversation. I couldn't tell you everything word for word even if it's just happened. It's like it goes in one ear and out the other. Like following instructions if I've been given 3/4 things to do if I've not written down I would be able to remember 3 & 4 but not 1 & 2
@A MyEpilepsyTeam Member I am sorry to hear that your family reacts that way. However, you have friends on here, and we can reassure you that you are normal. Epilepsy/Seizure Disorder doesn't make… read more
Good way to help yourself. Like it.
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
Any positive information on Epidiolex as the only meds? Currently on Zonagran. I'm reading and so many bad side effects. We asked our doctor to switch
Had a abnormal 24 EEG 1 month ago and in 2019,but not the cleavland clinic wants a 3 day EEG, I wish the shared data more . We have a functional doctor appointment and generics appointment. I'm my son's voice until he finds it and if takes fighting for his rights and researching like a scientist, then must be done.
JDelakit Understand concern bout meds sides but look at some ads for over-counter meds on TV. Side effects galore.The 3 day testing is fantastic not bad if you want to know why this will give you… read more