I submitted a reasonable accommodation request on 10/18/22 asking that my job give me 12 hours off of work, specifically during the hours of 7pm to 7am, due to the fact that I must wake up at 6am to get my children ready for school. Also to see to it that I may get enough sleep, because the recommended amount of sleep for someone with my disability is 8-10 hours of continuous sleep per night. My boss agreed to accommodate my request for one week only: 10/31-11/05/22, even though I… read more
Easier said than done. But you deserve better than them!!!!
As part of my little medicine cocktail I'm on 20 mg am ,20 mg am of clobazam ( Onfi ,Frisium) I'm still awaiting contact from my new neuro.I decided to reduce the night time dosage to 1 tablet .I know it's a benzodiazapine & strong Anybody had problems weaning themselves of this ? I don't intend to reduce it any more TIA
I din’t have Onfi but do have friscium!
I was diagnosed with febrile seizures (fever) when I was a child (13 m. o. to 7 y. o.). About a month ago, I was told that a seizure caused my work place accident. I have thought of other things that could cause like fainting or blacking out. I even discussed it with the neurologist. He says he 90% sure the seizure caused me to blackout, hit my head, and fracture my lower jaw.
Has anyone else had this long of period between episodes? I feel, within the last ~four weeks that I am losing my mind… read more
@A MyEpilepsyTeam Member, I am doing pretty OK. You are right, life will be "alright". I will do everything to keep myself safe. Ups and downs are teachable moments.
My daughters has myoclonic juvenil epilepsy, last year she had a total of 3 seizures , on February will be the junior trip to bush gardens, she should go? She enjoy the roller coasters, we have gone to the parks and we have never had any problem, but I don't know if it's fine to let her go, because I will not be there with her, she is very excited about to go to the trip with her friends.
Does anyone else have an up & down type of depression? One day you’re good, another day you’re doing well but something small makes you emotional & cry all of the sudden, another day you're good but something annoying happens & you get angry fast, another day and you’re sitting with your kitty (or other pet) on your lap at 8pm & you just hold them, thanking them & saying you love them, because they’ve saved your life... going in an up & down wobbly circle.
As well as my epilepsy I also suffer from depression so I am on antidepressants as well as my anticonvulsants anyway.
Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name
In general what jobs do people with uncontrolled epilepsy do?
I have a degree and worked as a Counselor till I had a massive heart attack.
Since having epilepsy I've only seen a few people have a sezure on TV i watch some body yesterday on TV have a sezure I thought it was upsetting to the point I cry I wouldn't like to see myself shocking what we go through and our body's bless everyone ❣️ and stay positive strong and never ashamed let s all hope for a better 2023
I just want to be seizures free for the rest of my life 😪
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more