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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Rns Device Implant
A MyEpilepsyTeam Member asked a question 💭

I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.

A MyEpilepsyTeam Member

I have had the RNS for 4 years 1 battery replacement and a ton of adjustments. When I first got it i was having 12-14 seizures a month. Now I'm down to 4-6 so cut in half and some of them I barely… read more

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Has Your Attention Span Shortened After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?

A MyEpilepsyTeam Member

Thanks, Kathryn13.

Who Is Excited About The NFL Playoffs Games?
A MyEpilepsyTeam Member asked a question 💭

I’m really happy that Tampa Bay Bucs made it. They’re playing home against Dallas Cowboys Monday night!

A MyEpilepsyTeam Member

I wish I could say something but my husband is a football official (he is an umpire). Both he and. I would be in so much trouble if it was found that he made a prejudiced statement. So enjoy the… read more

About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

Hum

Can My Son Have Seizures
A MyEpilepsyTeam Member asked a question 💭

I had serzuire since I was 2 yrs old and I am 31 yrs old and my son is 10 yrs old just wondering if he would have them or if would get them from me

A MyEpilepsyTeam Member

I was wrong in my original comment, you can pass epilepsy through genetics. Although just because you have epilepsy doesn’t necessarily mean that it was passed on through genetics

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Jobs Vs Disability (SSDI)
A MyEpilepsyTeam Member asked a question 💭

Ive been fired from 6 jobs within the past year alone for "too many missed work days" due to seizures. Or my co-workers "being uncomfortable w my epilepsy and chance of seizures". I had a seizure at work at 2 of my jobs and was fired from both shortly after each. My question is, how do you handle others who don't understand epilepsy in the workplace? I'm currently applying for SSDI but it's taking FOREVER! Would you apply for disability or continue to work knowing it would be a less than 6… read more

A MyEpilepsyTeam Member

I applied for disability and had no problem getting it but my situation is a bit defferent because I became legally blind first. I can only see center vision on my left eye and on right lower vision… read more

Why Am I Blanking Out In The Middle Of Doing Things And When I Come To I Don't Remember What Happened All I Know Is Im On The Floor
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

There are 2 possibilities
1. You experiencing bad side effects of your medication(s)
2. You are actually having , some form of a seizure.

I too have blackouts. They are a type of seizure . I also… read more

How Many Of You Work?
A MyEpilepsyTeam Member asked a question 💭

I have not had a single job since I graduated highschool 5 years ago and started having seizures. I am scared of what might happen if I do and being rejected because of my disability or getting hurt on the job. My family sees me as lazy and that I'm just living off the government though. I've decided I'm not going further with tests and not going to take anymore pills so am excepting that this seizure cycle is how I'm going to be living for now on. I have handed out a few resumes in some safe… read more

A MyEpilepsyTeam Member

They have know right to ask, if you offer it up that’s on you. Once you are employed, you have the right under the ADA to request accommodations. So long as it doesn’t change the course of the… read more

Aging With Seizures: What Affects/not Affect Seizure Activity? Hrt, Bhrt, Natural Supps, Laser Or RF Skincare? Thx!
A MyEpilepsyTeam Member asked a question 💭

I feel like I’m falling apart! My skin, hair and muscle tone are changing and my energy levels are too. Any info on how to approach management of care (external and internal) without affecting seizures? I eat clean and exercise, but I’m suddenly feeling at a loss here. Any info or personal experiences are welcomed. Trying to be as great as I can while I can. Thx!

A MyEpilepsyTeam Member

My looks have long surpassed me. I'm not pretty anymore, I lost my figure, my skin used to be flawless without make-up. I praise God to still be alive but sometimes I wonder if my purpose was to not… read more