I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
I usually have 2-3 grand mal seizures each year. I've had 8 now, in just the first 5 months of my pregnancy. Given my experience over the last 21 years of my life since I was diagnosed, I think I'll have a seizure during labour (fatigue & stress). Its a huge concern of mine and I think a planned C-section is a better option.
I had my sons very young 18 I was pregnant and had our oldest 8.lb 9oz ...ouch !! I did have seizures in my pregnancy and did a natural delivery. Second son was just under 8 lbs ??? You should do… read more
I've been taking Keppra for almost 8 years now and off and on I've experienced unsightly fluid retention in the legs and stomach. I've never thought to associate the two previously but in the warmer months it gets pretty bad.
I was just wondering if anyone else has experienced something similar while taking Keppra or perhaps I just have a predisposition to fluid retention....
If you have experienced it how have you managed it?
I'm a mum of a 15 year old but as I've got older epilepsy has become unfortunate!!!
I was thinking the same thing
There are 2 possibilities
1. You experiencing bad side effects of your medication(s)
2. You are actually having , some form of a seizure.
I too have blackouts. They are a type of seizure . I also… read more
Im currently 33 weeks pregnant and have very mild seizures (petite mal) which I've been having around 1 a week.
I've been asking to think about being induced at 39 weeks due to me being epileptic but can't see any evidence that this is normal. Has anyone else had this?
When I was pregnant I was induced once out of 5 pregnancies my first only because i had preeclampsia if you have that your dictors concerned if not you will be fine pregnancy is a stresser but to make… read more
Hey everyone new here
Just a little background. I was diagnosed with Juvenile Myoclonic Epilepsy in 2017 and I am 30 years old. As many of you know you can also have Tonic Clonic and Absence seizures under this umbrella, so to speak. I have suffered status twice from tonic Clonic seizures due to flashing lights. Just wondering if anyone has been diagnosed later in life. I also have a Chiari malformation which is a herniation of my spine into the fornum magnum ( back of the skull) of… read more
Well let us know what happens. Best of luck.
After all the seizures, achy muscles, meds, hospital stays, ambulance rides. What has this disorder made you appreciate, love, and accept more?
Value life and treasure every second of it
I have had since I was 3 years
Now I am 35
I had serzuire since I was 2 yrs old and I am 31 yrs old and my son is 10 yrs old just wondering if he would have them or if would get them from me
I was wrong in my original comment, you can pass epilepsy through genetics. Although just because you have epilepsy doesn’t necessarily mean that it was passed on through genetics
Do you think having a seizure disorder makes you less able to handle stress then someone who hasn't got a seizure disorder?
I find I can't handle stress like my body can't tolerate it I wasn't like that before when I was healthy and seizure free.
@A MyEpilepsyTeam Member, Sorry, no can do. Here's You Message.