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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Rns Device Implant
A MyEpilepsyTeam Member asked a question 💭

I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.

A MyEpilepsyTeam Member

I have had the RNS for 4 years 1 battery replacement and a ton of adjustments. When I first got it i was having 12-14 seizures a month. Now I'm down to 4-6 so cut in half and some of them I barely… read more

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I'm Pregnant And My Seizures Have Increased A LOT. Does Anyone Have Experience With C-section Vs. Vaginal Birth Under These Circumstances?
A MyEpilepsyTeam Member asked a question 💭

I usually have 2-3 grand mal seizures each year. I've had 8 now, in just the first 5 months of my pregnancy. Given my experience over the last 21 years of my life since I was diagnosed, I think I'll have a seizure during labour (fatigue & stress). Its a huge concern of mine and I think a planned C-section is a better option.

A MyEpilepsyTeam Member

I had my sons very young 18 I was pregnant and had our oldest 9oz ...ouch !! I did have seizures in my pregnancy and did a natural delivery. Second son was just under 8 lbs ??? You should do… read more

Has Anyone Ever Experienced Fluid Retention While Taking Keppra?
A MyEpilepsyTeam Member asked a question 💭

I've been taking Keppra for almost 8 years now and off and on I've experienced unsightly fluid retention in the legs and stomach. I've never thought to associate the two previously but in the warmer months it gets pretty bad.

I was just wondering if anyone else has experienced something similar while taking Keppra or perhaps I just have a predisposition to fluid retention....

If you have experienced it how have you managed it?

A MyEpilepsyTeam Member

My son was put on keppra and he gained 20 kilos in one year. His stomach has remained bloated even though he’s off keppra. It was devastating for him and compromised his mobility

Pregnancy & Epilepsy
A MyEpilepsyTeam Member asked a question 💭

I'm a mum of a 15 year old but as I've got older epilepsy has become unfortunate!!!

A MyEpilepsyTeam Member

I was thinking the same thing

Why Am I Blanking Out In The Middle Of Doing Things And When I Come To I Don't Remember What Happened All I Know Is Im On The Floor
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

There are 2 possibilities
1. You experiencing bad side effects of your medication(s)
2. You are actually having , some form of a seizure.

I too have blackouts. They are a type of seizure . I also… read more

I'm Being Asked If I Want To Be Induced At 39 Weeks Pregnancy Is This Normal?
A MyEpilepsyTeam Member asked a question 💭

Im currently 33 weeks pregnant and have very mild seizures (petite mal) which I've been having around 1 a week.
I've been asking to think about being induced at 39 weeks due to me being epileptic but can't see any evidence that this is normal. Has anyone else had this?

A MyEpilepsyTeam Member

When I was pregnant I was induced once out of 5 pregnancies my first only because i had preeclampsia if you have that your dictors concerned if not you will be fine pregnancy is a stresser but to make… read more

Anyone Diagnosed With JME In Adulthood?
A MyEpilepsyTeam Member asked a question 💭

Hey everyone new here
Just a little background. I was diagnosed with Juvenile Myoclonic Epilepsy in 2017 and I am 30 years old. As many of you know you can also have Tonic Clonic and Absence seizures under this umbrella, so to speak. I have suffered status twice from tonic Clonic seizures due to flashing lights. Just wondering if anyone has been diagnosed later in life. I also have a Chiari malformation which is a herniation of my spine into the fornum magnum ( back of the skull) of… read more

A MyEpilepsyTeam Member

Well let us know what happens. Best of luck.

What Has Having Epilepsy Showed, Taught, Or Made You Appreciate More In Life?
A MyEpilepsyTeam Member asked a question 💭

After all the seizures, achy muscles, meds, hospital stays, ambulance rides. What has this disorder made you appreciate, love, and accept more?

A MyEpilepsyTeam Member

Value life and treasure every second of it
I have had since I was 3 years
Now I am 35

Can My Son Have Seizures
A MyEpilepsyTeam Member asked a question 💭

I had serzuire since I was 2 yrs old and I am 31 yrs old and my son is 10 yrs old just wondering if he would have them or if would get them from me

A MyEpilepsyTeam Member

I was wrong in my original comment, you can pass epilepsy through genetics. Although just because you have epilepsy doesn’t necessarily mean that it was passed on through genetics

A MyEpilepsyTeam Member asked a question 💭

Do you think having a seizure disorder makes you less able to handle stress then someone who hasn't got a seizure disorder?
I find I can't handle stress like my body can't tolerate it I wasn't like that before when I was healthy and seizure free.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, Sorry, no can do. Here's You Message.