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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

What Is The Legal Route To Go When A Person With Epilepsy Has Been Scammed At A Emergency Room At A Hospital?
A MyEpilepsyTeam Member asked a question 💭

About 5 months ago my 2 friends took me to a emergency room at a local hospital. I had a falling seizure a day and half before and I had the symptoms of a concussion. My friends and I wanted to find out if I did have a concussion for sure. Disappointing experience we all had. Didn't find out anything about a concussion. A month and a half later I got 3 bills totalling right under 5 thousand dollars. Got my medical records for that day, for I could get anyway. It was full of lies, with… read more

A MyEpilepsyTeam Member

Unfortunately, you have to let them know you are taking them to court, and if this does not inspire them to listen and fix the records, then take them to court.

Has Anyone Had The RNS SURGERY, Please Provide Me With Any Feedback.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Mine was like sean. I did a 14 day stay eeg one surgery , stitches. They monitored me for about 2 months then we started making adjustments. My battery change was a day surgery a lot smaller cut than… read more

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COLLEGE
A MyEpilepsyTeam Member asked a question 💭

anyone know how to get someone to back off if thier giving you a hard time about your epilepsy an related issues . My professor feels like I getting one over on the systems and i feel is riding my ass

A MyEpilepsyTeam Member

Yes file a complaint , he is just ignorant .

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Does Anyone Besides Me Dream About Siezing?
A MyEpilepsyTeam Member asked a question 💭

For as long as i can remember i have had dreams about having siezures. I wake up and my head hurts and im tired all day as if i actually had a siezure. Am i siezing in my sleep or is it just a dream?

A MyEpilepsyTeam Member

Explain situation when you see your specialist as it could very likely be nocturnal seizures. My daughter is going to have a 24 x7 testing with a special set up to see if this is what is causing her… read more

Watches
A MyEpilepsyTeam Member asked a question 💭

Does anyone manufacture a watch to alert to seizures, heart problems, etc.
I only have two skinny wrists, so I don't have a lot of room for multiple watches.😁

A MyEpilepsyTeam Member

Robert5
My phone doesn't automatically call 911. It sent a picture to certain contacts. When I had a heart attack & my daughter called 911 from Michigan I tried to convince EMTs all I needed was a… read more

Providers
A MyEpilepsyTeam Member asked a question 💭

They stop my seizure medicine ,I started stuttering alot more and having migraines after seizures. They all want to say pnes and I don't know what to do anymore I have fits and I do not call 911 or go to hospital. Only if I had migraine for 4 or 5 days
Because of the way the medical staff treat me in Juneau,AK yet neurologist wants proof and my family refuses to call anyone for help if they see any activity because they want it to be factitious or pnes
My sister use to fake her seizures… read more

A MyEpilepsyTeam Member

Like this it it why man kind makes duct tape and sells over the counter medicines mix and fix no Dr required

Liquid Medications And Clean Dry Oral Syringes
A MyEpilepsyTeam Member asked a question 💭

They plan on moving me to an Assisted Living Facility. I am deeply concerned about keeping the Oral Syringes clean and dry. I do a wonderful job, and the Nurse who visits agrees.

Does anyone know how this is dealt with in these places?

Leslie

A MyEpilepsyTeam Member

Sue
Because they think I need a nurse all the time I would not qualify. However, I ended up ordering 30 extra new ones. It was15, but they come in packages of 2. I also gave the Doctor the… read more