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Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Mine is 300mg bid
Only 2 grand mals since 2015 and monthly absence seizures
I take 250mg morning and evening. This has increased slowly over 8 years.
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Lack of sleep is a Trigger, so I go to sleep after 9 AM.
They somehow were under the impression I would need a Nurse with me at all times. I did not move there because they do not provide that level of care. My Conservator will continue working on it… read more
Hello
My 9 year old missed his levetiracetam this morning. We did not realize it until noon. He takes his medicine twice a day. Every 12 hours. We try to take it every time at the same time. His doses are 8:30 am and 8:30 pm. We have this set due to school and bed time. My question is: Is it safe to skip one dose. My son only had 2 full convulsion seizures. He also has night seizures/terrors when sleeping. His doctor wants to start winging him off his medication after we view his next EEG and… read more
Thank you everyone for your reply. So far he’s fine. No affects from 1 mission dose. We have timers and alarms on every phone and device to remind us. We were distracted at that time. I hope it never… read more
As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.
I take 145 mg of phenobarbital.
116 at night
On it 29 years
What do you do to remember to take meds when you take more than once a day!
And my phone scares the heck out of me all the time with reminders
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
Hello! I could not find any answers to this topic. Do you all find that you generally need more sleep than others? I know everyone is different, but I find that I usually need 8+hours of sleep daily. I am very diligent about getting enough sleep as that is one of my main triggers. On the weekends, I can easily sleep for 9+ hours. Is anyone else like this?
I would say yes, I’m the same way in that I need about 8 hours on a regular schedule in order to function normally, and without it I’ve been more prone to seizures. But I purposely plan and keep to… read more