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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

What Songs Do You Listen To, To Cheer You Up?
A MyEpilepsyTeam Member asked a question 💭

I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.

A MyEpilepsyTeam Member

Some songs that I like:

#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more

What Are My Options?
A MyEpilepsyTeam Member asked a question 💭

I submitted a reasonable accommodation request on 10/18/22 asking that my job give me 12 hours off of work, specifically during the hours of 7pm to 7am, due to the fact that I must wake up at 6am to get my children ready for school. Also to see to it that I may get enough sleep, because the recommended amount of sleep for someone with my disability is 8-10 hours of continuous sleep per night. My boss agreed to accommodate my request for one week only: 10/31-11/05/22, even though I… read more

A MyEpilepsyTeam Member

Easier said than done. But you deserve better than them!!!!

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

How Long Have U Had Ur Disorder
A MyEpilepsyTeam Member asked a question 💭

if anyone is free to chat i am here

A MyEpilepsyTeam Member

I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Side Effects On Certain Food With Your Medicines
A MyEpilepsyTeam Member asked a question 💭

Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?

A MyEpilepsyTeam Member

I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate

Has Anyone Lost Years Of Their Memory After Having Epilepsy Surgery?
A MyEpilepsyTeam Member asked a question 💭

I had the surgery when I was 42. Most of the memories, I was left with, are from when I was a kid.

A MyEpilepsyTeam Member

I havent quite noticed too much loss of memory yet. Only minimal short term memory loss. Like trying to remember words, or something i dod like yesterday. But other than that i still have a pretty… read more

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Epidiolex
A MyEpilepsyTeam Member asked a question 💭

Has anyone on here been using this?
I've found some research on it but I'd like to know peoples personal experiences?

A MyEpilepsyTeam Member

never heard of it is it a new medication ?