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No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Since having epilepsy I've only seen a few people have a sezure on TV i watch some body yesterday on TV have a sezure I thought it was upsetting to the point I cry I wouldn't like to see myself shocking what we go through and our body's bless everyone ❣️ and stay positive strong and never ashamed let s all hope for a better 2023
I just want to be seizures free for the rest of my life 😪
Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name
I've had seizures since 1989. They are all simple partial. The last 2 times I've had a seizure, I was SCREAMING... I mean at the top of my lungs, like I was being killed screaming! I have NEVER done that before. I've made little noises, but nothing even close to how it was then. The 1st one I was in a restaurant having dinner with some friends. All of a sudden I started seizing. About 2 minutes in, I started screaming. My hubby said I was screaming vulger words. On the 2nd one, it was… read more
Marielba...:
Mine are usually the same, Tonic Clonic. Every now and then my seizures go into a Petite Grandmal.
Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?
Thanks, Kathryn13.
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
There are 2 possibilities
1. You experiencing bad side effects of your medication(s)
2. You are actually having , some form of a seizure.
I too have blackouts. They are a type of seizure . I also… read more
Since I started taking Vimpat my memory has gotten worse. It seems to have gotten worse as my dose has increased. Has anyone else had this problem? Vimpat has also raised my blood pressure
Ask your doc if vimpat messes up your memory. Our epilepsy is not remembering things. My friend who does not even have epilepsy tells me the older we get she even cannot remember stuff.