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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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I Have Read About People Losing Loved Ones To Epilepsy Is It Epilepsy That Takes Them, Is It What Happens To Them During The Seizure.
A MyEpilepsyTeam Member asked a question 💭

My wife is living with epilepsy and I am so scared to death of losing her. I would like to know if there is anything we could do, or is it something that's inevitable?

A MyEpilepsyTeam Member

I would say when for some reason the seizures can not be controlled, no matter what they do

Body Tremors
A MyEpilepsyTeam Member asked a question 💭

My question is how many of you experience twitches and body tremors in different parts of your body and how common is it to get them

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , yes we have seen a doctor about.. the D. Just said it’s not anything serious to worry about.. it happens to many people.. it doesn’t matter if it’s in my own bed . It has… read more

Have You Ever Been Accused Of Faking Epilepsy To Get Attention?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Not being believed is worse than a seizure. I hope your days are sunny and peaceful.

A MyEpilepsyTeam Member asked a question 💭

when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work

A MyEpilepsyTeam Member

I just had one done. The results should be available by the 26th, which is when I have an appointment.

What Songs Do You Listen To, To Cheer You Up?
A MyEpilepsyTeam Member asked a question 💭

I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.

A MyEpilepsyTeam Member

Some songs that I like:

#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Is It Normal To Be Paralysed During And After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

I'm still new to these seizures that I experience I've researched the seizure process and it does says there's a paralysis that does happen called Todd's paralysis but I'm curious to know does anyone else experience this?
it's quite scary I find I always worry that I won't be able to ever move again after.

A MyEpilepsyTeam Member

It happen to some people, during and after a seizure. It’s the area of the brain , that the brainwaves hits and makes you temporarily paralyzed

A MyEpilepsyTeam Member asked a question 💭

I took Dilantin for a few years as a child. I'm not sure why my doctor switched me from Dilantin to Tegretol, but I'm assuming it's because I broke through on it. I really liked it, but I suppose what I'm on now is best for controlling my seizures.

A MyEpilepsyTeam Member

Since then, I've been on numerous forms of Tegretol,, Tranxene for a short time, and currently, Leviteracetam(Keppra, in addition to Tegretol). Chelsey, what does VNS stand for?

Have You Ever Had A FREE DAY Thn Thy Cm Bk Bk 2 Bk?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I do not know if this question was for me SeraMartin, but I see another Neurologist next week on Thursday. I hope that they come up with something new for me.