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Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Not being believed is worse than a seizure. I hope your days are sunny and peaceful.
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Do you guys drive?
Losing the right or ability to drive is not only hard it just down right sucks! It is a means to independence. I haven’t driven in almost 9 years and I hate every minute. Having said that I look at… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
Does anyone feel really emotional or a change in their emotions after their seizure or for the next day or so?
I find I can feel quite down and sad, sometimes near crying or I cry a little. Not crying because I can't cope or that I'm upset about having a seizure, just more that I feel really down. In the past I've also felt a little angry or moody after a seizure as well.
Just wondering if this is normal and if anyone else has experienced this?
I have grand mal/tonic clonic seizures.
Thanks x
OMG I am so thankful I have found this community.
How many people still manage to still work full time and have breakthrough seizures?
I worked 6 days a week 50/hrs wk. for 35 years. I had worked in a lumberyard. I started working outside making houseloads of lumber. Very physical labor. I moved into customer service, less physical… read more
Something some said got to me. Not all forms of epilepsy make tou loose consciensness. I am always alart and and aware of several of my triggers. My sezuires are either absent, mind staring or simple/conplex jerks (like a cold chill).
I have complex partial seizures. My neurologist and I have talked about my license as I have brought it up. He sees no reason to revoke my license and my diagnosis does not require them to be.
Anyone else still have their license?
I still have mine but I'm not allowed to drive for 6 months after I've had a sz. Just had a major one that sent me to the hospital and required stitches above my right eye.
During a pleasant, perfect late spring bike ride in 2011 (I've biked regularly since age 25) on a great well-known trail, my vision suddenly turned weird. All the beautiful colors of late spring turned suddenly to only 2 colors - red and gold. It stayed that way for about 10 minutes as I slowly biked along the trail. Normal vision then returned. In subsequent weeks other events occurred. I lost the ability to speak properly for 1-2 minutes and the ability to write down simple words in English. I… read more
I was classified as "reason unknown" for 55 years, until I started with a new neurologist (one in Boston rather that Southeastern Massachusetts), and I had my first of all of these: 2 brain MRIs, Pet… read more
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too