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Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Does Anyone Take Oxcarbazepine? If So, Have U Noticed Any Side Effects?
A MyEpilepsyTeam Member asked a question 💭

I am also taking Divalproex...so if anyone is taking these two is it affecting you?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , Continued from above: In mid 2019 I began having these verbal tics where I say or holler words, names, phrases or humming or moaning noises uncontrollably & I don’t know… read more

Does Anyone Know How To Find Out What Might Have Triggered A Seizure Who Had. If You Only Had One In Over 40+ Years?
A MyEpilepsyTeam Member asked a question 💭

The only thing that I haven't had to deal with until maybe mid 2000's I found out I have type 2 diabetes. That and the medication made me get dehydrated quite often. I have always had dealt with stress and Sleep deprived because I was hyperactive and insomnia. So I don't think that did it. But aa the years went by and added medication for diabetes I became more prone to dehydration. I couldn't drink enough water to stay hydrated. The day I had my last seizure after all them years I was so… read more

A MyEpilepsyTeam Member

So far I can drive if I want to even on a medication. I just don't have a car lol. So it's public transit for me and my husband.

In Addition To My Epilepsy, I Have A Learning Disability. I Do Not Know If They Are Related. I Know Seizures Have An Effect On Memory.
A MyEpilepsyTeam Member asked a question 💭

I know the tests said my memory was poor. When given directions, I did not carry out the task well or consistently. The inability to do so the Doctor felt would getting and keeping a job difficult.

A MyEpilepsyTeam Member

Sometimes the drugs they give people with epilepsy can cause memory problems. Try asking your doctor about that.

Changing From Carbmazrpine To Keppra
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

My body hates briviact . Tegretol worked for me . Im in the middle of getting off Keppra.

Hey Folks. Having Major Struggles After My Last Seizure. Anyone Else Deal With Depression And Anxiety Weeks After Their Seizure?
A MyEpilepsyTeam Member asked a question 💭

I recently had my third seizure at 29 years old. My first was a Febrile Seizure at age 5 or so. My second was around 22; I went to a music festival after barely sleeping, didn't eat, drank and smoked marijuana. Third was after a long night of drinking and poor sleep. Smoked marijuana and instantly went into one. I was diagnosed 2 weeks ago with IGE. I haven't started my Keppra yet as I've already been dealing with anxiety and depression for the last year or so. I haven't been able to have a… read more

A MyEpilepsyTeam Member

Love your honesty thanks for it

Does Anyone Have Any Seizures That Present Similar To A Panick Attack? What About Before An Episode/after One?
A MyEpilepsyTeam Member asked a question 💭

It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...

A MyEpilepsyTeam Member

After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more