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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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What Are My Options?
A MyEpilepsyTeam Member asked a question 💭

I submitted a reasonable accommodation request on 10/18/22 asking that my job give me 12 hours off of work, specifically during the hours of 7pm to 7am, due to the fact that I must wake up at 6am to get my children ready for school. Also to see to it that I may get enough sleep, because the recommended amount of sleep for someone with my disability is 8-10 hours of continuous sleep per night. My boss agreed to accommodate my request for one week only: 10/31-11/05/22, even though I… read more

A MyEpilepsyTeam Member

Easier said than done. But you deserve better than them!!!!

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?







A MyEpilepsyTeam Member

Got that degree in 2012.

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I had more seizures in my 40's than any other time except my teens. The seizures I had in peri menapause were also more severe, causing a loss of memory and balance. It took weeks to get over each… read more

Does Anyone Else Have An Up & Down Type Of Depression?
A MyEpilepsyTeam Member asked a question 💭

Does anyone else have an up & down type of depression? One day you’re good, another day you’re doing well but something small makes you emotional & cry all of the sudden, another day you're good but something annoying happens & you get angry fast, another day and you’re sitting with your kitty (or other pet) on your lap at 8pm & you just hold them, thanking them & saying you love them, because they’ve saved your life... going in an up & down wobbly circle.

A MyEpilepsyTeam Member

As well as my epilepsy I also suffer from depression so I am on antidepressants as well as my anticonvulsants anyway.

Does Surgery Make The Seizures Go Away Fully?
A MyEpilepsyTeam Member asked a question 💭

I have been epileptic since I was about 7 years old and am now 27 years old and feel like this past year has been one of the worst when it comes to the amount of seizures I’ve had
At the beginning of 2019, my doctor and I decided to try a new medication called Lamotragine and slowly take me off the older medication carbamezapine as I wasn’t fully under control. While I was on the carbamezapine I would have about 1 seizure/year and it was durable and livrable. We decided to lean another… read more

A MyEpilepsyTeam Member

I had a right lobectomy surgery back in 2012. It never stopped my seizures but it did reduce them by more than half! I was haveing about 20+ gran mal seizures a year and now im having like 5-8 a year… read more

6 Month Old Just Been Diagnosed With Epilepsy And Is On Keppra
A MyEpilepsyTeam Member asked a question 💭

Hi I'm new to all this and absolutely terrified :(
My baby boy has just started having what we think are focal seizures. He spent 2 weeks in hospital having tests and all came back normal except EEG shows epileptic activity on the right side of his brain and occasionally in the left. They have put him on keppra and I'm scared of side effects and long term affects!! It's hard to tell if it's keppra or his age! Please help

A MyEpilepsyTeam Member

I don’t think it is smart or safe to take generic medication. This comes from a personal experience: the drug company was trying to save money for themselves, so they started giving me generic keppraread more

Emotional State And Temporal Lobe Epilepsy
A MyEpilepsyTeam Member asked a question 💭

I have temporal lobe epilepsy and sometimes i can feel really happy for no apparent reason and other times i can feel so low it's ridiculous, and the moods are always accompanied with a stuffy head, almost like a hangover, Could it be linked to the epilepsy?

A MyEpilepsyTeam Member

I am almost always stuffy. I attribute it to allergies and small nasal and ear, etc passages, a nurse told me that. My father had tons of allergies, too but a nurse told me I had small ear passages… read more