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Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name
my new years resolution is to to be healthyer. just wondering what is your new years resolution(s)?
MarleneFerraro: thank you and good luck to you as well! i always have a list of things i'm working towards. Sometimes i dont hit the goal by the time i set it so i reevaluate and adjust what i need to… read more
In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more
According to my research Clonazepam/Klonopin was first approved by the US Food and Drug Administration in 1976. This approval means that it will be available from pharmaceutical companies in a… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
My neurologist wants to put me on EPIDIOLEX. Does anybody have any experience with this medication. I would love to hear your reviews and experiences. Good or bad.
@Churcham. I can tell you from professional experience (14 years doing interlibrary loan work for Massachusetts General Hospital--and getting at least article, chapter, book, etc. request filled for… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
My ex bf was 29 years when he passed away from a random sezure at the age of 29 he was born with fetal alcohol syndrome and scaring on the left side of the brain..is this something that happens and could there have been anything to prevent his premature death
He may of had a a SUDEP ( sudden unexplained death in epilepsy ) . The best thing is to talk to a specialist in this area
Has anyone herd of a infant of 14 days old start with seizures and they were so severe they damaged the brain and at 29 days Sally Lynn died. The seizures were resistant to Pentobarbitol, phenobarbital, Kepra, kedamine, fentonal, and Topamax. She was on all of these at one time and finally they were putting in a new arterial line and she died 1.5 hours later. Has anyone herd of this?
I am sorry but don’t give up hope on getting a answer to your questions. You are in my prayers and I hope you get those answers
i have had epilepsy since 4 and i was recently diagnosed with temporal lobe epilepsy and my epilepsy specialist said that surgery might be a good option but i also have other types of epilepsy so i dont know if my other types would be affected not only that but i have a traumatic brain injury and acute encophalophaly
Francis2,
I don’t blame You!
I've been involved in natural/herbal/Eastern medicine for epilepsy (and other issues) for 29 years after giving "modern medicine" 41 out of 48 years of my life with hardly any benefit and more side effects than I could take anymore. It was out of desperation that I tried the "snake oil" (as 99.9% of the medical community still refers to it as) approach, and let me tell you, it was the BEST thing I ever did for myself! Within less than 2 weeks I noticed a HUGE improvement in my seizures taking… read more
Use nothing but. After doctor did me wrong