Quick Links
Resources
About MyEpilepsyTeam
Powered By
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I had more seizures in my 40's than any other time except my teens. The seizures I had in peri menapause were also more severe, causing a loss of memory and balance. It took weeks to get over each… read more
As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.
I take 145 mg of phenobarbital.
116 at night
On it 29 years
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Got that degree in 2012.
My neurologist wants to put me on EPIDIOLEX. Does anybody have any experience with this medication. I would love to hear your reviews and experiences. Good or bad.
@Churcham. I can tell you from professional experience (14 years doing interlibrary loan work for Massachusetts General Hospital--and getting at least article, chapter, book, etc. request filled for… read more
Not being believed is worse than a seizure. I hope your days are sunny and peaceful.
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
Nope cause I take one RX Lamictol 200mg 1 in morning 2 at night along with RX Tegretol been 25 yrs sz free since and living way life was met
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
Vagus Nerve Stimulator. Serves for making a seizure less intense, bringing down rapid palpitations and eases depression. This depends on the model implanted by your neurosurgeon. More information… read more