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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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What’s Your Favorite, And Least Favorite Thing About An EEG?
A MyEpilepsyTeam Member asked a question 💭

Favorite:
Sleeping or watching tv

Least favorite:
1. Lack of sleep
2. Strobe lights
3. Blowing on a windmill

A MyEpilepsyTeam Member

My least favorite part of an EEG was having the electrodes implanted directly into my scalp. Then I was told to relax!

Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

What Is Y’all’s Dream While Having Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I live with epilepsy day after day and my dream is to be a video editor but there’s been another dream stopping from happening because of all these meds I’m going to attempt to try it anyways though by training myself for the Navy. I hope my body can take this dream. This is important.

A MyEpilepsyTeam Member

You can do anything please don't let this epilepsy ruin your life ... a gave up my jibs because of ot a regert it a was going to collapse once a week to learn my lifted a had 2 jobs 1 in a care… read more

Video EEG
A MyEpilepsyTeam Member asked a question 💭

I have to a video eeg done. I have watched some YouTube videos, but still have questions. Will they just stop all my medications as soon as i am in the hospital? Or what?

A MyEpilepsyTeam Member

It all depends on how long the EEGV is . For one day, they won’t do a thing with meds.

From 4 - 7 days they will decrease your meds little bit at a time everyday
They want to try and get as big of… read more

Tremor
A MyEpilepsyTeam Member asked a question 💭

So, this is just weird. Has anyone been shaky just in one hand? My right hand is shaking out of control, while my left hand is steady like a brick.

A MyEpilepsyTeam Member

There are 2 possibilities, why I get shaky hands.

1. Every once in awhile I would get the hand shakes if I didn’t eat properly.
2. I would get shaky hand or hands, if I didn’t eat

Seizures
A MyEpilepsyTeam Member asked a question 💭

I am 57 with MS. I am mobile but still have some issues such as falling and dizziness. 2 weeks ago I had 3 seizures in 2 days. Have never had 1. Went to neuro and after tests declared my ms has caused epilepsy. Do you spend time alone? I find myself being afraid to be alone.

A MyEpilepsyTeam Member

Keppra is the medication I am on also.

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Weight Gain On Keppra
A MyEpilepsyTeam Member asked a question 💭

Has anyone experience a weight gain on @Keppra? I have gained almost 20 lbs in just 45 days. I also take Zoloft for depression and anxiety.

A MyEpilepsyTeam Member

Just the opposite for me however I'm not on zoloft. I'm on Buspar. Iv lost 40 lbs