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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

What Is The Legal Route To Go When A Person With Epilepsy Has Been Scammed At A Emergency Room At A Hospital?
A MyEpilepsyTeam Member asked a question 💭

About 5 months ago my 2 friends took me to a emergency room at a local hospital. I had a falling seizure a day and half before and I had the symptoms of a concussion. My friends and I wanted to find out if I did have a concussion for sure. Disappointing experience we all had. Didn't find out anything about a concussion. A month and a half later I got 3 bills totalling right under 5 thousand dollars. Got my medical records for that day, for I could get anyway. It was full of lies, with… read more

A MyEpilepsyTeam Member

Unfortunately, you have to let them know you are taking them to court, and if this does not inspire them to listen and fix the records, then take them to court.

My 9 Yr Old With Focal Seizures And On Three Meds He Has Been Suggested Surgery … Any Thoughts On That Would Be Greatly Appreciated
A MyEpilepsyTeam Member asked a question 💭

My son has focal seizures and on three meds .. he still gets seizures auras make it very hard for him … his doctors suggest a brain surgery as he has a brain injury during birth … any advice or recent experience anyone had ….

A MyEpilepsyTeam Member

I had my first brain surgery at the age of 23. By that time my Brian was fully developed.

My Epileptologist told me that if this surgery existed whenI was younger, I would of had a better chance… read more

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Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Video EEG
A MyEpilepsyTeam Member asked a question 💭

I have to a video eeg done. I have watched some YouTube videos, but still have questions. Will they just stop all my medications as soon as i am in the hospital? Or what?

A MyEpilepsyTeam Member

It all depends on how long the EEGV is . For one day, they won’t do a thing with meds.

From 4 - 7 days they will decrease your meds little bit at a time everyday
They want to try and get as big of… read more

Does Anyone Else Feel A "Deja Vu" Before They Have A Seizure?
A MyEpilepsyTeam Member asked a question 💭

Sometimes it is a feeling like I have been in that same exact spot, looking at the same exact thing I have seen in a dream. Sometimes I even wake up to a "Deja Vu" and feel nausea and like I have to diarrhea at the same time.

A MyEpilepsyTeam Member

I have auras just before I have a tonic clonic episode. The auras are enough of a warning that I was able to retain my driver’s license. I can pull over and put my vehicle in bark before I lose… read more

I Want To Know How Other People Have Learnt To Live With Epilepsy And It Has Affected Them
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Naomi Love the way you can handle seizures within your mind. The smart way- you just deal with them if or when they occur. Once we know the reality our mind can relax a bit not get upset or down… read more

Work ?
A MyEpilepsyTeam Member asked a question 💭

How many people still manage to still work full time and have breakthrough seizures?

Last of 154 replies sign up to view previous answers
A MyEpilepsyTeam Member

I worked 6 days a week 50/hrs wk. for 35 years. I had worked in a lumberyard. I started working outside making houseloads of lumber. Very physical labor. I moved into customer service, less physical… read more

Does Anyone Else Suffer From Memory Loss Be It Short Or Long Term ?
A MyEpilepsyTeam Member asked a question 💭

It tends to affect most of my personal life. It's quite embarrassing at times, working with a colleague for 3 years and all of a sudden you can't remember something like names. Going to your boss to ask or tell them or tell them something and just stand there because you don't remember. It's frustrating not to mention annoying.

A MyEpilepsyTeam Member

I have a terrible memory. I do remember staying up late studying for exams etc. when I was in school for hours. I would read a chapter in a book then an hour later all that information did not sink… read more