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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Does VNS Mean?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Vagus Nerve Stimulator. Serves for making a seizure less intense, bringing down rapid palpitations and eases depression. This depends on the model implanted by your neurosurgeon. More information… read more

Has Your Attention Span Shortened After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?

A MyEpilepsyTeam Member

Thanks, Kathryn13.

Epilepsy Started In My Life At Age 55 And It Came Out Of Nowhere.
A MyEpilepsyTeam Member asked a question 💭

During a pleasant, perfect late spring bike ride in 2011 (I've biked regularly since age 25) on a great well-known trail, my vision suddenly turned weird. All the beautiful colors of late spring turned suddenly to only 2 colors - red and gold. It stayed that way for about 10 minutes as I slowly biked along the trail. Normal vision then returned. In subsequent weeks other events occurred. I lost the ability to speak properly for 1-2 minutes and the ability to write down simple words in English. I… read more

A MyEpilepsyTeam Member

I was classified as "reason unknown" for 55 years, until I started with a new neurologist (one in Boston rather that Southeastern Massachusetts), and I had my first of all of these: 2 brain MRIs, Pet… read more

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Housing , Caseworker
A MyEpilepsyTeam Member asked a question 💭

Why isn't there housing help or caseworkers for us .and if there is you have to be 55 or 66.

A MyEpilepsyTeam Member

Yeah that right that's a shame!!!

Medication And Relationships
A MyEpilepsyTeam Member asked a question 💭

Sorry for this question but do any men find they have a reduced sex drive because of the medication they are on which is affecting their relationship with their long term partner?

A MyEpilepsyTeam Member

Never had that problem growing up even with ep or when got married and still dont but now Loving on wife is over as wife passed from cancer unless get married as lonely now

Has Anyone Had Issues With Medications And Oral Health, Do You Wear Or Need Dentures Or Partials?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No, I don't. Going to the dentist soon, so I'll ask. If you don't mind, I'll add you to my team and provide an answer. It won't be for a month or so, though.

Why Am I Blanking Out In The Middle Of Doing Things And When I Come To I Don't Remember What Happened All I Know Is Im On The Floor
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

There are 2 possibilities
1. You experiencing bad side effects of your medication(s)
2. You are actually having , some form of a seizure.

I too have blackouts. They are a type of seizure . I also… read more

SSDI Backpay
A MyEpilepsyTeam Member asked a question 💭

Whats anyone or everyones experiences with SSDI backpay? Ive struggled years to get a favorable decision and am so so thankful! But now seems like they're putting me off, keep telling me they're sending messages to the payment center when i call them. Its not leading anywhere. I called my lawyer and spoke to the paralegal she advised mento wait another 2 weeks and call them back. Thank you all!

A MyEpilepsyTeam Member

We didn’t when my husband got his, but that was back in 2017

Sleep
A MyEpilepsyTeam Member asked a question 💭

My son have trouble sleeping. Is this normal in epileptics?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I’m definitely not on the. I’m on 5 other prescriptions brands . 1 or more of those probably have the side effect of my insomnia.

Hopefully, when my DBS power box is on and… read more

Anyone Feel Defeated When They Have To Adjust Meds And Can't Drive?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No. I did lose the ability to drive b/c of complex partial seizures (new term used today after 2017 reclassification but you know what I mean) for about 3 yrs. But I'm driving again. So keep the… read more