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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Side Effects On Certain Food With Your Medicines
A MyEpilepsyTeam Member asked a question 💭

Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?

A MyEpilepsyTeam Member

I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate

Has Anyone Been For A 24 Hour Eeg Scan? Is It Better Then A Normal Eeg Scan?
A MyEpilepsyTeam Member asked a question 💭

I am going for a 24 hour scan next week and I want to see if it will show me blanking out and being restless as the normal eeg shows my seizures but not to an extend on how long and so forth. Is this scan worth my while?

A MyEpilepsyTeam Member

I had those tests plus a digitrace for when your being at home

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Hi Have Any Of You Guys Had Temporal Lobectomy Surgery? If So What Is Outcome And Was It Successful
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

After approximately 18 years of trying all sorts of medications and treatments to control intractable daily / weekly temporal lobe seizures and approximately monthly grand mal seizures, I made the… read more

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Finding Friends
A MyEpilepsyTeam Member asked a question 💭

Someone on here mentioned wanting to locate old friends.
Have you tried Facebook or other social media sites?
My high school class has established such a site.
Through Facebook I was able to reestablish contact with the "boy" who used to live down the street
from me. I also re-met a cousin I hadn't seen since we were both 6 years old.
Give it a try. It's nice to contact old friends. (In my case really old LOL)
The best of luck to you. ❤️

A MyEpilepsyTeam Member

Francis2,
35 years? Wow! That's wonderful.

Can Getting Older Or Age Increase Seizure Activity?
A MyEpilepsyTeam Member asked a question 💭

I'm just wondering because I've noticed that as I'm getting older my seizures first came back and with increased activity

A MyEpilepsyTeam Member

I was diagnosed at 7. They called them Petit Mal back then. I had taken a huge number of medications, dosages and combinations. In my early 20s I had taken all then known AEDs. After a lot of tests, I… read more

Opinions On Fycompa?
A MyEpilepsyTeam Member asked a question 💭

My neurologist added Fycompa to my lamictal and vimpat. The lamictal and vimpat combo has worked pretty well for the most part, but I’ve had a few breakthroughs and serious insomnia. My neurologist said that lamictal can cause insomnia. I had no idea. I’ve been taking it for years, but I had also been taking medication to help me sleep up until a few months ago. I am nervous about starting Fycompa, but hopeful as well. He is going to ween me off lamictal completely over the next 6 weeks. Any… read more

A MyEpilepsyTeam Member

I’m on the max dose one Fycompa. My Dr. Told my wife and I, to pay attention to my abnormal emotions. If I start acting paranoid , suicidal thoughts, get angry easier, and ect. To let her ( my Dr. )… read more