No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
FEEL GOOD STORY. Yesterday a woman I've occasionally collaborated with through work (but barely know) called me to ask a question. After that, she asked me how I am. I haven't spoken with her in a few years, so I told her about my epilepsy. Turns out, she was diagnosed with epilepsy the year before I was! We had a grand old time telling seizure stories, complaining about how people don't understand and minimize our symptoms. All the stuff we do on here, only she didn't seem to know much… read more
6. Thus, I have my epilepsy all my life, but I had intermission between 5 and 13/14 years old. And it was not until last April 25th, that I had my last seizure because adding a 4th anticonvulsant… read more
Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
Hi all. My son recently started seizing (grand mal) again after 4 years of being seizure free. I’m looking to buy him a seizure alert device but wanted to know if anyone has any experience with them. I’m currently looking at My Medic Watch App which connects to a smartphone or the Embrace 2 Watch. Are there any other options out there? Your insight is much appreciated.
Hi Becky. My son started having absent seizures when he was 7. At age 15 he suffered from his first grand mal (this happened after his father’s funeral. He died from congestive heart failure)… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
I know the tests said my memory was poor. When given directions, I did not carry out the task well or consistently. The inability to do so the Doctor felt would getting and keeping a job difficult.
Sometimes the drugs they give people with epilepsy can cause memory problems. Try asking your doctor about that.