In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more
Ahh ok I was just wondering. Thank you Marilee.
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Did anyone switch from brand name Vimpat to generic Vimpat recently now that it's available? If so, how are you feeling?
I started generic Vimpat/lacosamide a few weeks ago after 3 years on the brand name. Still trying to figure out how it's going for me. Sometimes I feel like I'm angrier than usual and felt some deja vu sensations today. Used to have those with brand Vimpat every few months though so not anything new.
I switched to generic due to insurance in February 2023. I have had a ton of issues including breakthrough seizures and weakness and lots of double vision and dizziness. My doctor just increased the… read more
I've noticed we are some intelligent. Spiritual, artistic and poetic people on here can you all show me some stuff. I'm just in awe of us as a disabled people. I truly am shine peeps shine
Love your description w/ math!
Hi all. My son recently started seizing (grand mal) again after 4 years of being seizure free. I’m looking to buy him a seizure alert device but wanted to know if anyone has any experience with them. I’m currently looking at My Medic Watch App which connects to a smartphone or the Embrace 2 Watch. Are there any other options out there? Your insight is much appreciated.
Hi Becky. My son started having absent seizures when he was 7. At age 15 he suffered from his first grand mal (this happened after his father’s funeral. He died from congestive heart failure)… read more
Sleeping or watching tv
1. Lack of sleep
2. Strobe lights
3. Blowing on a windmill
My least favorite part of an EEG was having the electrodes implanted directly into my scalp. Then I was told to relax!
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more