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Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Anybody Have Nocturnal Sezure
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Since I was diagnosed epileptic at 15 months old (December 1979), most of my seizures are nocturnal but I also have absence, tonic clonic & generalised focal ones, so I’ve been epileptic now for 43… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Have Anyone Had Children During The Epilepsy Exspireince ? , Being Diagnosed Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I am 25 years old , is scared to have children because of my disgnose , I need a little support ,

A MyEpilepsyTeam Member

I had two girls . One was 11 6 1/2 & the other was 10 lbs 6 Oz.

The oldest is pregnant with her first child and the youngest just finished 1 year of college. Yes I was on AEDs and the only issue… read more

In Addition To My Epilepsy, I Have A Learning Disability. I Do Not Know If They Are Related. I Know Seizures Have An Effect On Memory.
A MyEpilepsyTeam Member asked a question 💭

I know the tests said my memory was poor. When given directions, I did not carry out the task well or consistently. The inability to do so the Doctor felt would getting and keeping a job difficult.

A MyEpilepsyTeam Member

Sometimes the drugs they give people with epilepsy can cause memory problems. Try asking your doctor about that.

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

Hum

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Do You Guys Get Staring Seizures Or Ever Feel Like You Cant Focus??
A MyEpilepsyTeam Member asked a question 💭

Ive been having these for a while and when i was in school, home, etc., id get these things where i stare and cant reply to someone and cant focus. I kinda just zone out for 10-15 seconds. I dont know if thats normal for epilepsy patients or not because i always felt different because of this.

A MyEpilepsyTeam Member

I have a couple of vision issues
1. My absence seizures, where I go into a blank stare or look like I’m daydreaming.
2. I have blackouts and blur vision.

My last EEG study proved that my blackouts… read more