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Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Who Is Excited About The NFL Playoffs Games?
A MyEpilepsyTeam Member asked a question 💭

I’m really happy that Tampa Bay Bucs made it. They’re playing home against Dallas Cowboys Monday night!

A MyEpilepsyTeam Member

I wish I could say something but my husband is a football official (he is an umpire). Both he and. I would be in so much trouble if it was found that he made a prejudiced statement. So enjoy the… read more

Has Your Attention Span Shortened After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?

A MyEpilepsyTeam Member

Thanks, Kathryn13.

About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

Hum

Does Anyone Else Suffer From Memory Loss Be It Short Or Long Term ?
A MyEpilepsyTeam Member asked a question 💭

It tends to affect most of my personal life. It's quite embarrassing at times, working with a colleague for 3 years and all of a sudden you can't remember something like names. Going to your boss to ask or tell them or tell them something and just stand there because you don't remember. It's frustrating not to mention annoying.

A MyEpilepsyTeam Member

I have a terrible memory. I do remember staying up late studying for exams etc. when I was in school for hours. I would read a chapter in a book then an hour later all that information did not sink… read more

Reaction!
A MyEpilepsyTeam Member asked a question 💭

If/ I may ask, should you not be comfortable answering by all means. How has everyone felt after their diagnoses? Was it hard to accept?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Sorry to hear that you have had to endure all of that! I was blessed that back in 1980, the focus was on my heart (because my older brother had to have open heart surgeryread more

How Long Have U Had Ur Disorder
A MyEpilepsyTeam Member asked a question 💭

if anyone is free to chat i am here

A MyEpilepsyTeam Member

I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age

How Many EEGs Did You Have To Get Before You Were Diagnosed?
A MyEpilepsyTeam Member asked a question 💭

I had to have 2 EEGs. First one was an inpaitent EEG for 3days went no where and the hospital staff and doctors were rude as hell to me
Second on was at a diffrent hospital for only an hour and they got excatly what they needed shortly after that i was diagnosed with FLE and TLE epilepsy was put on keppra and then topamax but had to come off of those and currently on Lamictal. My offical diagnosis is Primary Generalized Epilepsy
I recall having like 3 or 4 absence seizures in a row every few… read more

A MyEpilepsyTeam Member

I honestly don't know because at the end of my first appointment, my neurologist had me hooked up to an ambulatory EEG for 48 hours, thus I do not know at what time during that period the ambulatory… read more

Has Anyone Else Gone Long Periods Of Time Without A Neurologist Or Epitologist
A MyEpilepsyTeam Member asked a question 💭

I've been without a neurologist or epitologist for over a year do to the COVID crud my primary Care has like myself been trying to get me into a neurologist. But as of yet no goal.

A MyEpilepsyTeam Member

This is my biggest problem in regards to neurologists/epileptologists. I was seeing a local neurologist in a small town and I couldn't see where he was doing me any good. I'd go in. He'd look at… read more