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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?







Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

What Songs Do You Listen To, To Cheer You Up?
A MyEpilepsyTeam Member asked a question 💭

I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.

A MyEpilepsyTeam Member

Some songs that I like:

#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more

Trileptal And Lamictal
A MyEpilepsyTeam Member asked a question 💭

My almost 18 year old son has had seizures since he was 6 years old. He’s been taking Trileptal and Lamictal. He has had two grand mal seizures in the last month. His doctor slowly increased his lamicatal to 175 mg twice a day. He has been throwing up every day after his morning dose. It happens two hours after taking his medication and last for two or more hours. His neurologist doesn’t think it’s from his medication. She said from his blood work it shows he metabolises his medication… read more

A MyEpilepsyTeam Member

Thank you for the positive response

Do You Use Anything To Help You Remember Take Your Medication?
A MyEpilepsyTeam Member asked a question 💭

I have made a routine of taking my medications, however, when something disrupts that routine, I sometimes tend to forget to take my medication. How you found anything useful to help you remember take your medications?

A MyEpilepsyTeam Member

Got a pill box to lay on my table, is a weeks supply at a time! Alarms on iPad and telephone come in handy! Thanks for asking

Frontal Lobe Surgery
A MyEpilepsyTeam Member asked a question 💭

I am just about to meet the surgeo. Asi am a candidate for surgery (all my tests confirm i have a focus point (dysplasia) in my frontal lobe.
It has been mentioned to me that the surgeon is proposing 1 step surgery (i.e no grids inplanted etc! Which is pleasing to hear)
Who has had this surgery? Postive outcomes?negative outcomes?
Would love for any info feedback!!

A MyEpilepsyTeam Member

Hi BrittneeLeigh
Could you please share how surgery went

Has Anyone Had Their Dr Tell Em Slow Down On Caffeine? Or Is It Just Me?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I had a neurologist ask me to stop drinking Coke (caffeinated), for a week or so to see what effect it had
I switched to 7-up
Seizures? No effect; but I did drop a few pounds. LOL (BTW I didn't need… read more

Learn About Cannabidiol And The Health Benefits!
A MyEpilepsyTeam Member asked a question 💭

Come to this free webinar on Facebook
Sunday - May 7, 2017 From 3-4PM MST

A MyEpilepsyTeam Member


Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too