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3D Movies
A MyEpilepsyTeam Member asked a question 💭

Anyone have seizure reactions to watching a 3D movie? I sure would like to watch Thor Love and Thunder in 3D but not sure if my brain will react. Thoughts please?

A MyEpilepsyTeam Member

I think the type of movies like being a stressful or comedy might have something different each time too!

Has Anyone Ever Heard Of Hereditary Seizures
A MyEpilepsyTeam Member asked a question 💭

I was diagnosed several years ago with grand mal seizures, except that an EEG wouldn't detect them while I was having them. Was diagnosed with hereditary seizures.Was wondering has anyone else heard of the term or something similar??

A MyEpilepsyTeam Member

What is 3D printing? My son is on 3000mg of Keppra but don't know if it's 3D printing?

Epilepsy And Driving With Lights
A MyEpilepsyTeam Member asked a question 💭

For the past week when I have been driving home in the dark, I have become nauseas within 5 minutes of driving. I feel like I am going to pass out and overwhelmed with the headlights coming towards me. Does anyone else experience this?? It has been overwhelming for me lately and I am not sure if it has to due with my epilepsy. (Also, I have never had a seizure due to flashing lights.)

A MyEpilepsyTeam Member

My husband doesn't really understand . Sonit makes it hard

Severe Headache
A MyEpilepsyTeam Member asked a question 💭

My husband woke up with a severe headache this morning, so bad he was crying, never have seen him cry in pain before. Says it's like a crushing feeling in his head behind his left eye. Makes it hard to even function. Anyone experience anything like this?

A MyEpilepsyTeam Member

Yes all the time only thing I can do is put ice n lay down

Photosensitive Epilepsy
A MyEpilepsyTeam Member asked a question 💭

Does anyone here have Photosensitive epilepsy?
If so how were you tested and treated.

A MyEpilepsyTeam Member

Very!!

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Does Any One Have Problems With Seizures And Migraines?
A MyEpilepsyTeam Member asked a question 💭

I had a bad, throbbing headache on Tuesday night/Wednesday morning. It was so bad my husband ended up taking me taking me to the ER. I couldn't open my eyes because the light hurt so bad, or move my head because that made me so sick. Every noise made me feel like I was going to die. I was also having my lovely complex partial seizures, yay, oh, yay :( and my husband thought maybe I was having a stroke or something, lol. Well, I guess it's really not that funny. Anyway, at the ER, the doctor… read more

A MyEpilepsyTeam Member

I have had them so bad that the only way to keep the light from getting in wore a headband folded bandanna (over my eyes), then I had these Glasses ( the ones the Dr gives you when they dialate them)… read more

Just Wondering If Anyone Has Been On Cytoxan To Treat Autoimmune Disease Causing Epilepsy
A MyEpilepsyTeam Member asked a question 💭

I think im going mental these auras are worse im hearing things and translating them although its normal its like there in 3D mode

A MyEpilepsyTeam Member

Prayers for you , I don't know anything about it

Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name