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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

What Do People Do For Anxiety Instead Of Meds? In Example Breathing Control.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Good way to help yourself. Like it.

Need Advice On How To Deal With 28 Yr Old Son And Wanting A Girlfriend
A MyEpilepsyTeam Member asked a question 💭

My son is 28 with uncontrolled seizures since 8 months old,brain damage and operates on about a 10 yr old level. But he knows that men and women have sex,kind of knows what sex is and wants a girlfriend, so he can feel sex(his words). He does not go anywhere socially, we live in a small town and I just dont know how to handle this. Every day he asks me to find him a girlfriend. Help, what should I do?

A MyEpilepsyTeam Member

My son is 21. He has a severe seizure disorder which has left him at about age 10-12 also. He knows that adults should have buddies, girlfriends jobs etc. But he can't go out and find these things on… read more

Pregnancy?
A MyEpilepsyTeam Member asked a question 💭

I'm not sure if I'm pregnant. I started spotting a little bit and my period isn't for another week and a few days. I keep feeling little shots of pain in my lower abdomen. I'm not on any form of contraceptive, only tracking my cycle

A MyEpilepsyTeam Member

It's normal to get your period from 21 - 28 days. Usually 28 days is usually the normal time but can be early or late. But if your worried call the Dr.

Left Temporal Lobe Surgery
A MyEpilepsyTeam Member asked a question 💭

My son is set to have left temporal lobectomy on September 28 2018. I am wanting to talk to people who have had this done and your experiences. We are very nervous.

A MyEpilepsyTeam Member

I had this surgery in 2000. I have issues with processing information, lower stress tolerance, impulsivity, and light and noise sensitivity. I also have additional memory problems that cause confusion… read more

Have Anyone Had Children During The Epilepsy Exspireince ? , Being Diagnosed Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I am 25 years old , is scared to have children because of my disgnose , I need a little support ,

A MyEpilepsyTeam Member

I had two girls . One was 11 6 1/2 & the other was 10 lbs 6 Oz.

The oldest is pregnant with her first child and the youngest just finished 1 year of college. Yes I was on AEDs and the only issue… read more

How Can I Help My Teenager Accept His Diagnosis? He Is In Denial.
A MyEpilepsyTeam Member asked a question 💭

My 19 year old son developed primarily nocturnal epilepsy about 5 years ago. He goes through phases of hating to take his medications (now on Aptiom and Zyprexa at maximum doses, 3 big tablets twice daily). There was a brief time when he stopped his medications but a grand mal in the middle of Ruby Tuesdays got his to realize he needs his meds. The problem with his disease is most of the activity is while sleeping, his only knowledge that he had the episode is a headache and usually a bite on… read more

A MyEpilepsyTeam Member

When I was first diagnosed with epilepsy I struggled with depression and the loss of independence (I couldn't drive for a while). It took me some time to come to accept that epilepsy is a condition I… read more

What Has Having Epilepsy Showed, Taught, Or Made You Appreciate More In Life?
A MyEpilepsyTeam Member asked a question 💭

After all the seizures, achy muscles, meds, hospital stays, ambulance rides. What has this disorder made you appreciate, love, and accept more?

A MyEpilepsyTeam Member

Value life and treasure every second of it
I have had since I was 3 years
Now I am 35

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more