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I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?
Thanks, Kathryn13.
I am 25 years old , is scared to have children because of my disgnose , I need a little support ,
I had two girls . One was 11 6 1/2 & the other was 10 lbs 6 Oz.
The oldest is pregnant with her first child and the youngest just finished 1 year of college. Yes I was on AEDs and the only issue… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
Sorry for this question but do any men find they have a reduced sex drive because of the medication they are on which is affecting their relationship with their long term partner?
Never had that problem growing up even with ep or when got married and still dont but now Loving on wife is over as wife passed from cancer unless get married as lonely now
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
Since I was diagnosed epileptic at 15 months old (December 1979), most of my seizures are nocturnal but I also have absence, tonic clonic & generalised focal ones, so I’ve been epileptic now for 43… read more
I'm about to start taking it. It's a fairly new medication and I'd like to know more about it
I'm glad the Vimpat and Brivact are working for you @A MyEpilepsyTeam Member. They're working for me too