My first EEG came back abnormal. I get seizures daily and now I am taking the 3 day EEG at home. I want to make sure I don't do anything that would give wrong results. Can medication, drinking coffee or moving head cause it to be abnormal? Can the EEG not show my seizure? I want to make sure that this test will show what is happening. Can the test be normal even though the seizures are happenings? I am having so much anxiety about this
I am having the seizures and if this test is not showing… read more
Does anyone do support groups where they live? I am having a lot of issues at home, because of my health. Dr's are not helping either. I would love to be around others that understand and possibly can… read more
In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more
According to my research Clonazepam/Klonopin was first approved by the US Food and Drug Administration in 1976. This approval means that it will be available from pharmaceutical companies in a… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?
I have days where I have to really fight to stay awake. It's next to impossible to keep my eyes open.
I've been tested for a lot of things; but so far no answers.
Yesterday I underwent a Doppler ultrasound of my carotid arteries. (I'll have to wait several days for the results.)
Has anyone else experienced such sleepiness?
Sometimes I sleep well at night. Other times ( like last night)
I don’t sleep at all. It varies.
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
Hi ya it s not easy working with epilepsy I take my hat off to all them that do like you say it s when you're I'll and having to take time off bless you never give up ☺️
Good way to help yourself. Like it.
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more