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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?







Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

17 Year Old Son With Prolonged Partial Complex Seizures With Breath Holding/ Apnea
A MyEpilepsyTeam Member asked a question 💭

Hello. My son developed viral encephalitis 5 months ago. He was initially have several seizures a day in hospital. Now he has a partial complex seizures with loss of awareness from once a week to once a month. He has a brief aura so can call out for help. If we don’t give him rescue meds it lasts longer than 5 minutes and he turns blue. He’s on Keppra and oxcarbazepine. Any one else need rescue meds each time. So scared for his safety

A MyEpilepsyTeam Member

What rescue med do you have ?

What Jobs And Or Careers Do People With Complex Partial Epilepsy Do?
A MyEpilepsyTeam Member asked a question 💭

In general what jobs do people with uncontrolled epilepsy do?

A MyEpilepsyTeam Member

I have a degree and worked as a Counselor till I had a massive heart attack.

3-5 Day EEG
A MyEpilepsyTeam Member asked a question 💭

With my 3-5 day EEG coming up, what should I expect? The biggest complaint is boredom is what I've been told. Will any activities be done to me to see if it triggers my seizures?

A MyEpilepsyTeam Member

I've done the week to week 2 eeg's look to be confined to your bed with all the wires and everything connected to your head and body and being sleep deprived to bring on a sezuire and being taken off… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Has Anyone Ever "unlocked" Stress Seziures?
A MyEpilepsyTeam Member asked a question 💭

Ive had epilepsy since i was born on my 18th birthday my brother stressed me out so much the doctor said i "unlocked" my stress seziures. They are nonelectrical so they couldn't pick anything up on sleep study.

A MyEpilepsyTeam Member

Steve, right now you are in the midst of intense spiritual warfare. What adds to the problem is the negative side effects of the medications that you are taking, and MD's not believing what you try… read more

How Long Does It Typically Take U To Recover From A Big Episode.
A MyEpilepsyTeam Member asked a question 💭

I had a 5 hr seizure episode on Monday, no loss of consciousness, just thendrops, myclonic jerks, ect
For the last 2 days, I've been so tired, nauseated and a hv huge headache. Also I'm feeling panicky. I hv this imminent sense of doom and my aura just won't go away
So I caved at called my pcp, cause I havent seen a neurologist is over 12 yrs.(I am cutrently not on any meds) Ofcourse he sent me to the E.R right away and here I am, waiting to been seen. I'm freaking out, what if they wanna… read more

A MyEpilepsyTeam Member

The longest time I've had one was 30 minutes. My worst ones as an adult was 11/29/2014 I had 6 seizures 30 minutes each one right after the other. Right before that I had made it to one year without… read more

What Is Your Sleep Like?
A MyEpilepsyTeam Member asked a question 💭

I was reviewing my sleep log (started keeping one July 13, 2018). I haven’t been to bed before midnight. A couple of nights I went to bed at midnight but more often it is between 2am-5am. I don’t have a consistent sleep pattern. Some nights it’s 4 hours, some nights it’s 10 hours. Regardless of how many hours I sleep, I feel wiped out when I wake up.

What is your experience like?

A MyEpilepsyTeam Member

I'm flakey as far as my sleep schedule. It's regular, but off hours. Unless I'm involved in physical activity, by 9:00 pm I can't stay awake. If I go to sleep, I'm up by 4:00 am, wide awake. I keep… read more