i want to know as much as possiable about it they r talking about doin this on my daughter

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

When did you get it?

1950s

1960s

1970s

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1990s

2000s

Hello. My son developed viral encephalitis 5 months ago. He was initially have several seizures a day in hospital. Now he has a partial complex seizures with loss of awareness from once a week to once a month. He has a brief aura so can call out for help. If we don’t give him rescue meds it lasts longer than 5 minutes and he turns blue. He’s on Keppra and oxcarbazepine. Any one else need rescue meds each time. So scared for his safety

In general what jobs do people with uncontrolled epilepsy do?

With my 3-5 day EEG coming up, what should I expect? The biggest complaint is boredom is what I've been told. Will any activities be done to me to see if it triggers my seizures?

Ive had epilepsy since i was born on my 18th birthday my brother stressed me out so much the doctor said i "unlocked" my stress seziures. They are nonelectrical so they couldn't pick anything up on sleep study.

I had a 5 hr seizure episode on Monday, no loss of consciousness, just thendrops, myclonic jerks, ect
For the last 2 days, I've been so tired, nauseated and a hv huge headache. Also I'm feeling panicky. I hv this imminent sense of doom and my aura just won't go away
So I caved at called my pcp, cause I havent seen a neurologist is over 12 yrs.(I am cutrently not on any meds) Ofcourse he sent me to the E.R right away and here I am, waiting to been seen. I'm freaking out, what if they wanna… read more

I was reviewing my sleep log (started keeping one July 13, 2018). I haven’t been to bed before midnight. A couple of nights I went to bed at midnight but more often it is between 2am-5am. I don’t have a consistent sleep pattern. Some nights it’s 4 hours, some nights it’s 10 hours. Regardless of how many hours I sleep, I feel wiped out when I wake up.

What is your experience like?