Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
I submitted a reasonable accommodation request on 10/18/22 asking that my job give me 12 hours off of work, specifically during the hours of 7pm to 7am, due to the fact that I must wake up at 6am to get my children ready for school. Also to see to it that I may get enough sleep, because the recommended amount of sleep for someone with my disability is 8-10 hours of continuous sleep per night. My boss agreed to accommodate my request for one week only: 10/31-11/05/22, even though I… read more
Easier said than done. But you deserve better than them!!!!
i want to know as much as possiable about it they r talking about doin this on my daughter
After all the seizures, achy muscles, meds, hospital stays, ambulance rides. What has this disorder made you appreciate, love, and accept more?
Value life and treasure every second of it
I have had since I was 3 years
Now I am 35
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Every time I get a headache and my vns goes off it makes it stronger. Is this normal? I know headaches are a side effect, but I don't have them everyday. When I do get headaches the vns makes them stronger.
As far as I know, I haven't had a seizure in over a year. It took me 11 months to feel like myself again after the last one. Then I had 3 months of feeling really good. Now all of a sudden the side effects (brain fog, memory, exhaustion, depression, word recall, etc.) are back. I'm trying hard not to feel like I'm backtracking and to view it as all part of the package. For those of you whose seizures are under control, do your side effects come and go?
I had between 20 too 30 episodes a day for at least 10years before the age of 15 they were temperl lob apsint mind. I would use better words if I could spell them my microphone isn't working for speak to text.
Iv been off medication since 18 which is around the last time I had one
Marijuana can help seizures (not in huge amounts in a safe amount) at least I’ve heard I asked my own neurologist and she said it does but not in crazy amounts I personally smoke weed and I’ve found it does help (when it isn’t super bad) if you do yourself what’s your opinion if you don’t still drop your opinion in the comments
Nicotine causes them I have to quit which is difficult but I feel like depending on what type of seizures you have depends on how it effects you
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more