I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name
It doesn't matter how much I try paying attention to the conversation. I couldn't tell you everything word for word even if it's just happened. It's like it goes in one ear and out the other. Like following instructions if I've been given 3/4 things to do if I've not written down I would be able to remember 3 & 4 but not 1 & 2
@A MyEpilepsyTeam Member I am sorry to hear that your family reacts that way. However, you have friends on here, and we can reassure you that you are normal. Epilepsy/Seizure Disorder doesn't make… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
I've got complex partial seizures with identified abnormality in my temporal lobe. Seizures are focal so my neurologist said surgery is an option I should consider, but I'm pretty scared and not sure it is worth it. My seizures aren't very bad and I could still lead a mostly-normal life but I plan to become a doctor and with sleep deprivation being a major trigger for me it may prevent me from pursuing my desire to work in a hospital (which means long hours). Im not sure about the process of… read more
Since I started taking Vimpat my memory has gotten worse. It seems to have gotten worse as my dose has increased. Has anyone else had this problem? Vimpat has also raised my blood pressure
Ask your doc if vimpat messes up your memory. Our epilepsy is not remembering things. My friend who does not even have epilepsy tells me the older we get she even cannot remember stuff.
I lost count of how many seizures I had the past weekend. My next neurologist appointment was not scheduled till January. I may have to reschedule it and reconsider the VEEG if the ward is open.
To everyone with a VNS do you believe it has helped? What is the process of receiving one like? I've done some research and it makes me nervous to consider