Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
i want to know as much as possiable about it they r talking about doin this on my daughter
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Marijuana can help seizures (not in huge amounts in a safe amount) at least I’ve heard I asked my own neurologist and she said it does but not in crazy amounts I personally smoke weed and I’ve found it does help (when it isn’t super bad) if you do yourself what’s your opinion if you don’t still drop your opinion in the comments
Nicotine causes them I have to quit which is difficult but I feel like depending on what type of seizures you have depends on how it effects you
I've noticed we are some intelligent. Spiritual, artistic and poetic people on here can you all show me some stuff. I'm just in awe of us as a disabled people. I truly am shine peeps shine
Love your description w/ math!
When I was working , I was only able to work 2nd and 3rd shifts. I was never able to wake up for early morning shifts. First time I tried to work the first shift , I was fired in 3 days , because I… read more
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
Ive had epilepsy since i was born on my 18th birthday my brother stressed me out so much the doctor said i "unlocked" my stress seziures. They are nonelectrical so they couldn't pick anything up on sleep study.
Steve, right now you are in the midst of intense spiritual warfare. What adds to the problem is the negative side effects of the medications that you are taking, and MD's not believing what you try… read more