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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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How Do You Handle The Huge Life Changes After Being Diagnosed As An Adult?
A MyEpilepsyTeam Member asked a question 💭

For those diagnosed later in life, how long did it take to overcome the sudden changes in your life? I was a total extrovert before seizures, always on the go. I never want to leave the house no because I'm scared of having a seizure in public or around friends most of which don't even know that I have them yet. The sudden change of not being able to drive has been very hard. It's been 13 months since I was diagnosed & I still feel completely isolated and cut off from the world outside my house… read more

A MyEpilepsyTeam Member

I've lost most of my family and friends because of my condition!! But y'all and little few family and friends that I have in my life is worth living and fighting to get better if that's even possible… read more

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

How High Is Your Dose Of Lamotrigine?
A MyEpilepsyTeam Member asked a question 💭

Mine is 300mg bid
Only 2 grand mals since 2015 and monthly absence seizures

A MyEpilepsyTeam Member

I take 250mg morning and evening. This has increased slowly over 8 years.

Was Wondering How Long It Takes Some People To Get Their Memory Back After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

I sometimes find it takes a few days for my memory and concentration to get back to normal.

A MyEpilepsyTeam Member

I figure everyseizure is 3 ,4 days blanked out of my memory.in over55 years a ot of lost time.Onetime went to florida by car from massachusetts with some friends.Was entering florida had agrand mal.to… read more

What Songs Do You Listen To, To Cheer You Up?
A MyEpilepsyTeam Member asked a question 💭

I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.

A MyEpilepsyTeam Member

Some songs that I like:

#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more

I Saw A Post On Here Saying They Were Looking For 2 People To Speak Up In A Short Documentary. I Can’t Find The Post That Was On Here :(
A MyEpilepsyTeam Member asked a question 💭

Deadline is December 19.. to have my email sent. Please if anyone knows where to find the post or the email . Let me know Does anyone know the email for the epilepsy casting call? I saw a post on here saying they were looking for 2 people to speak up in a short documentary. I can’t find the post that was on here :(

A MyEpilepsyTeam Member

Hey if you find it send it to Me Too!

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too