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Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Can you be free of epilepsy and after years return back?
Yes. You can be seizure-free for years and experience what one neurologist of mine termed "break-through seizures".)
What foods and diet have people tried to reduce their weight and thus seizure rate? Has it been successful?
Eat healthy and do what I do exercise like a machine. I maintain about 7% body fat and refuse to let my Epilepsy impact my training. I regularly have partial seizures running and just plough on. My… read more
As far as I know, I haven't had a seizure in over a year. It took me 11 months to feel like myself again after the last one. Then I had 3 months of feeling really good. Now all of a sudden the side effects (brain fog, memory, exhaustion, depression, word recall, etc.) are back. I'm trying hard not to feel like I'm backtracking and to view it as all part of the package. For those of you whose seizures are under control, do your side effects come and go?
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
I have to a video eeg done. I have watched some YouTube videos, but still have questions. Will they just stop all my medications as soon as i am in the hospital? Or what?
It all depends on how long the EEGV is . For one day, they won’t do a thing with meds.
From 4 - 7 days they will decrease your meds little bit at a time everyday
They want to try and get as big of… read more
So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more
read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling
Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?
I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate