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Does Anyone Have Any Seizures That Present Similar To A Panick Attack? What About Before An Episode/after One?
A MyEpilepsyTeam Member asked a question 💭

It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...

A MyEpilepsyTeam Member

After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more

How Long Have U Had Ur Disorder
A MyEpilepsyTeam Member asked a question 💭

if anyone is free to chat i am here

A MyEpilepsyTeam Member

I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Does Anyone Get Scared When You Since That You Are Going To Have A Seizure
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more

Dose Anybody Know If Epilepsy Is Hereditary Please. Thanks
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I don't know. My Father's Father died when My Dad was only 7 years old. Never knew much about Him.

Hi Have Any Of You Guys Had Temporal Lobectomy Surgery? If So What Is Outcome And Was It Successful
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

After approximately 18 years of trying all sorts of medications and treatments to control intractable daily / weekly temporal lobe seizures and approximately monthly grand mal seizures, I made the… read more

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About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

Hum

Is There Anyone Who Has Been Successful Discontinuing Their Asm Cold Turkey
A MyEpilepsyTeam Member asked a question 💭

My son wants to stop taking his anti-seizure medications that he's been on since he was 13 years old he is now 22 he is an adult so I'm looking for an alternative to this option

A MyEpilepsyTeam Member

He needs to seek the advice of a his neurologist, if he agrees with your sons decesion he will give your son a plan to reduce the meds gradually then eventually stop them
It's not a pleasant… read more

Is There Anyone Who Has Been Successful Discontinuing Their Asm Cold Turkey
A MyEpilepsyTeam Member asked a question 💭

My son wants to stop taking his anti-seizure medications that he's been on since he was 13 years old he is now 22 he is an adult so I'm looking for an alternative to this option

A MyEpilepsyTeam Member

You can never just suddenly just stop a asm. It's a little complicated but generally, most meds would need to be slowly reduced and this can take 2-3 weeks but on top of that, you would need a… read more

Is There Anyone Who Has Been Successful Discontinuing Their Asm Cold Turkey
A MyEpilepsyTeam Member asked a question 💭

My son wants to stop taking his anti-seizure medications that he's been on since he was 13 years old he is now 22 he is an adult so I'm looking for an alternative to this option

A MyEpilepsyTeam Member

2nd warning epilepsy meds stopped cold turkey could be fatal. Encourage son to realize meds are helping to control seizures like this.