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Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
My son wants to stop taking his anti-seizure medications that he's been on since he was 13 years old he is now 22 he is an adult so I'm looking for an alternative to this option
He needs to seek the advice of a his neurologist, if he agrees with your sons decesion he will give your son a plan to reduce the meds gradually then eventually stop them
It's not a pleasant… read more
My son wants to stop taking his anti-seizure medications that he's been on since he was 13 years old he is now 22 he is an adult so I'm looking for an alternative to this option
You can never just suddenly just stop a asm. It's a little complicated but generally, most meds would need to be slowly reduced and this can take 2-3 weeks but on top of that, you would need a… read more
My son wants to stop taking his anti-seizure medications that he's been on since he was 13 years old he is now 22 he is an adult so I'm looking for an alternative to this option
2nd warning epilepsy meds stopped cold turkey could be fatal. Encourage son to realize meds are helping to control seizures like this.
My son wants to stop taking his anti-seizure medications that he's been on since he was 13 years old he is now 22 he is an adult so I'm looking for an alternative to this option
Please advise him to becareful. I know what he is going through but AEDs like most drugs that have been taken for a long time can bring ramifications if you don’t stop them gradually.
My son wants to stop taking his anti-seizure medications that he's been on since he was 13 years old he is now 22 he is an adult so I'm looking for an alternative to this option
As his 22 years old i suggest he already decided what his doing, personally i would like to think he has gathered knowledge on possible complications of stopping cold turkey. Therefore it will most… read more
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
Does anyone feel really emotional or a change in their emotions after their seizure or for the next day or so?
I find I can feel quite down and sad, sometimes near crying or I cry a little. Not crying because I can't cope or that I'm upset about having a seizure, just more that I feel really down. In the past I've also felt a little angry or moody after a seizure as well.
Just wondering if this is normal and if anyone else has experienced this?
I have grand mal/tonic clonic seizures.
Thanks x
OMG I am so thankful I have found this community.
Sorry ,I've not been on for a few months due to family illness. .I'm on 3 anti convulsants Briviact,Lamotrigine & clobazam. . I know this a benzodiazapine & quite a powerful med .)My new consultant suggested I come off clobazam,which I've done ,gradually,over 6 weeks.( I first took it as a rescue med about 20 years ago but it became a med I took am & pm about 10 years ago.I also take Briviact & Lamotrigine) .Absences & focal onset seizures haven't been controlled for 10 years. ) To cut a long… read more
I never had to get off of mine but I agree Kathryn13 about the symptoms of withdrawal. I hope you will get over them soon. Are you feeling better now? I am getting off my medicine and I don't know… read more